A little about us, Brett and Melissa Pullman are mother and son and are participating in this fundraiser for Jack, son of Melissa and Dana and brother to Brett and Dean. Brett is 12 years old, Jack is 10 years old and Dean is 7 years old. Jack suffers from several lung diseases and EE. Jack has had one of the worst years medically of his young life. This is an opportunity for his mother and brother to raise awareness of EE and to raise money for research of this terrible disease. When you have a family member that is chronically ill, sometimes siblings can feel stressed and powerless. For Brett, as a sibling of Jack, this is finally his chance to be able to help his brother and others who suffer from EE. Brett has witnessed firsthand what this disease can do. This is an amazing opportunity and will be lifechanging for all involved.
You can follow Jack's medical "adventures" on his caringbridge page....
We will be climbing Mt. Kilimanjaro (the highest freestanding mountain in the world) to help build awareness and secure donations to help find a cure to this debilitating disease. The goal is to have a minimum of 10 teenage patients summit this incredible mountain. All donations will be given to CURED and 100% of the profits will go directly to provide research into this dreadful disease. The CURED foundation is a non profit and all donations are tax deductable. CURED is one of the few foundations to donate 100% of profits to research!
Ira Feuerstein (who is the brains behind this whole event) also has three children that live with this disease called EE. Here he explains all about EE.
Eosinophilic enteropathy is a complicated digestive system disorder in which eosinophils, a type of white blood cell, are found in above-normal amounts in one or more specific places in the digestive system and/or the blood.
When the body wants to attack a substance, such as an allergy-triggering food or airborne allergen, eosinophils respond by moving into the area and releasing a variety of toxins. However, when the body produces too many eosinophils, they can cause chronic inflammation, resulting in tissue damage.
Many children can only eat a handful of foods, as others cause the body to mistakenly send white blood cells to attack their GI tract.
Left untreated, it can lead to life threatening rupture of the esophagus.
This is your chance to make a difference in the lives of many children around the world. And help a few select ones reach the top of the highest free standing mountain in the world. We are looking for corporate sponsors as well as individual sponsors.
Visit our Facebook Page
Or our website http://climbforee.org/
Corporate sponsorship opportunities can be found at: http://www.climbforee.org
Personal donors, read on!
Any donation is accepted, but anyone who donates a minimum of $194 ($0.01 per foot), automatically gets entered into our Summit Club.
For a donation of a minimum of $194 become an important part of the Expedition Support Team!
What will you receive for donating your hard earned cash to our mission?
Immediately upon receiving your donation you will receive via mail:
· A Thank You Letter From Our Team
While Our Team Is Hard At Work Climbing Kilimanjaro:·
· You will have access to a special “donor-only” link that will deliver two live audio and possibly video feeds from the mountain on two special days during the climb – one during the ascent and the second at the peak.
Upon Our Teams Return You Will Receive Via Mail:
· An autographed photo of the team at the summit
· An Official Climb for EE shirt
We want to thank all of our family and friends for all of the support that they have given us over the course of a difficult year. If you are able to donate, we thank you for helping us in this incredible opportunity. If you are not able, thank you for taking the time to read about EE and possibly educating others. If you are willing, please share this fundraiser. Thank you all for your support in our efforts to combat this horrible disease.
The Pullman Family