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Sandra Darvish's Fundraiser:

THIS CAMPAIGN HAS BEEN CLOSED

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BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

EVENT DATE: May 01, 2016

Sandra Darvish

THE STORY:

HIBM, or GNE Myopathy, is an adult-onset muscle wasting disorder. It is hereditary. Starting in their late 20s, early 30s, patients slowly lose muscle strength, until they're no longer able to walk or use their arms and hands, or even hold up their head. It is extremely rare, and therefore there is not a lot of money or interest to do research and find a cure. Through grass-roots fundraising, we have been able to reach the point of clinical trials - treatments are actually being tested on patients. There is still more work to be done, and every little bit of funding helps, really! Watch the video, https://vimeo.com/67183189  or go to www.hibm.org for more information.

Thanks for your support!!!

$5,626

MONEY RAISED
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  • Bobby & Sandra Darvish

    $250

  • Akira Hatori

    $25

  • Joe Stern

    $250

  • Helen Rabizadeh Zaghi

    $50

  • Emma Cothren

    $25

  • Ravi Guha

    $250

  • Pama

    $800

  • Karl

    $50

  • Carolyn Witcomb

    $50

  • Susan Mitchell

    $25

  • Nadia Adhami

    $250

  • Feridoon Adhami, MD

    $100

  • Norman & Inka

    $100

  • Pam Lang

    $25

  • Roya Ijadi-Maghsoodi

    $50

  • Asher Rabizadeh

     

  • Matthew Mossanen, MD

    $100

  • Rimonda Adhami Ebneyamin

    $100

  • Anonymous

     

  • Jeroen Blom

    $50

  • Alex Adhami

    $100

  • Louis Trygar

    $50

  • Hugh Ryan

    $100

  • Borsheim Family

    $100

  • Erik & Joy Rowtliep

    $100

  • Negar kohandarvish

     

  • Erik and Ruby Ekblad

    $50

  • Jim & Laina Curran

    $50

  • Fam. Hugens

    $25

  • Dutch family and lots of friends

    $770

  • Carlos Magaña

    $100

  • Judy Ramsey and Jerry Kitz

    $100

  • Anonymous

    $100

  • Jerry, Kitty and Mike Vang

    $100

  • Cara Elizabeth Yar Khan

    $440

  • Abtin Missaghi

    $26

  • Bryan McElroy

    $100

  • Judi and Chuck McElroy

    $100

  • Rosalinda and Crystal

    $100

  • Janet McElroy

    $50

  • Philip Steinman

    $100

  • Anonymous

    $50

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56% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $5,626 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sandra Darvish

Amount Raised

$5,576

 

56% Raised of $10,000 Goal

Donor Comments

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

Philip Steinman

Philip Steinman

DONATION: $100

2 years ago

Janet McElroy

Janet McElroy

DONATION: $50

2 years ago

Rosalinda and Crystal

Rosalinda and Crystal

DONATION: $100

To Honor Our Friend Babak Darvish, MD 2 years ago

Judi and Chuck McElroy

Judi and Chuck McElroy

DONATION: $100

2 years ago

Bryan McElroy

Bryan McElroy

DONATION: $100

Good luck! 2 years ago

Abtin Missaghi

Abtin Missaghi

DONATION: $26

2 years ago

Cara Elizabeth Yar Khan

Cara Elizabeth Yar Khan

DONATION: $440

In honor of the dedication and sacrifices of Drs. Daniel and Bobby Darvish to find a cure for HIBM and in gratitude for their amazing wives, Sheila and Sandra, for the world-changing men they care for so lovingly. 2 years ago

Jerry, Kitty and Mike Vang

Jerry, Kitty and Mike Vang

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

2 years ago