Skip to content
helenrabizadeh-zaghi's profile image - click for profile

Helen Rabizadeh Zaghi's Fundraiser:

THIS CAMPAIGN HAS BEEN CLOSED

Helen's Photo

BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

ORGANIZER: Sandra

EVENT DATE: May 01, 2016

Helen Rabizadeh Zaghi

THE STORY:

Sandra Darvish wrote -

HIBM, or GNE Myopathy, is an adult-onset muscle wasting disorder. It is hereditary. Starting in their late 20s, early 30s, patients slowly lose muscle strength, until they're no longer able to walk or use their arms and hands, or even hold up their head. It is extremely rare, and therefore there is not a lot of money or interest to do research and find a cure. Through grass-roots fundraising, we have been able to reach the point of clinical trials - treatments are actually being tested on patients. There is still more work to be done, and every little bit of funding helps, really! Watch the video, https://vimeo.com/67183189  or go to www.hibm.org for more information.

Thanks for your support!!!

$50

MONEY RAISED
  • Helen Rabizadeh Zaghi

    $50

  •  
  •  
  •  

Fundraise for this Campaign

The Team: $5,626 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sandra Darvish

Amount Raised

$5,576

 

56% Raised of $10,000 Goal

Donor Comments

Helen Rabizadeh Zaghi

Helen Rabizadeh Zaghi

DONATION: $50

In memory of my parents, Mehrey and Bahram Rabizadeh 2 years ago