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Susan and Frank Leone's Fundraiser:

Cornelia de Lange Syndrome Foundation NYC 2013

Susan and Frank's Photo
Susan and Frank's Photo
Susan and Frank Leone

THE STORY:

We would like to start out by sharing with you the story of Frankie and his rare condition: CdLS. Frankie entered this world twenty years ago, eight weeks premature weighing a mere 2 1/2 pounds. Frankie is physically and cognitively affected by CdLS. Although at birth we were not given much hope nor information on this Syndrome we are so thankful that our family has had the ability to reach out to the Cornelia De Lange Syndrome Foundation, for not only answers but a sense of optimism. 

Frankie is not yet walking independently and continues to require assistance with all aspects of daily living; however, each time we see him, he inspires us to push ourselves a little harder and a little further than we would normally.    

Frankie is a thriving young man who has made enormous progress over the years. 

We are asking that you help us give back to the Foundation and help us raise money to provide the essential resources and support to other families and providers who are impacted by CdLS.  

We hope that each and everyone of you has the opportunity to help us out.

Thank you for visiting our fundraising page!
 

Thank you in advance for your support, and do not forget to forward this link to anyone who you think might want to donate too. (http://www.crowdrise.com/clsfoundationnyc2013/fundraiser/susansydneyleone

Susan, Sydney & Frankie Leone

$4,790

MONEY RAISED
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  • Marilyn Bell

     

  • Connie (Jones) Ganoff

     

  • D.leone

     

  • Mena De Angelis

     

  • Adriana and Antonella

     

  • Herron Family

     

  • Martin Burkhardt

     

  • Lazare Family

     

  • Michelle Roemer

     

  • Norine and Ronnie Roemer

     

  • Mike, Liana, Manny, Sofia and Michael Garcia

     

  • Regina C. Filannino

     

  • Maureen T. Bradley

     

  • Dan Levy

     

  • Tomlin Famliy

     

  • Birney Family

     

  • Diane Schmid

     

  • Pam farrell

     

  • Noel

     

  • Marissa Kanners

     

  • ERA Insite Realty Services

     

  • Elizabeth R.

     

  • Polhill Family

     

  • Gene and Nancy Daley

     

  • Pia Sanda and John Warlaumont

     

  • Diane Rizzo

     

  • Dr. Pete

     

  • Jeff Calhoun

     

  • Anonymous

     

  • jonathan king

     

  • Cindy T.

     

  • Marty and Sally Healy

     

  • Fritzi & Paul McClintock

     

  • Dina Messina

     

  • The Luckie Family

     

  • Olivia and Khloe

     

  • Bill & Carol Galdi

     

  • The Farrell Family

     

  • Jonathan Lenchner

     

  • The Foley Family

     

  • Mary Silvestro

     

  • Laura Janavey

     

  • Grandma Violet

     

  • Lori and Rob

     

  • Diane Calderon

     

  • Susan Kleiman

     

  • lori amer

     

  • Rich Smock and Ilya Sylvia

     

  • Rosanna Correia

     

  • Carla Gambescis

     

  • Rosemarie & Luigi Camia

     

  • Yvonne Wu

     

  • Chevon Jones

     

  • Dan Viglione

     

  • Anonymous

     

  • Payrick Quinn

     

  • Kathy Duffy

     

  • Morano family

     

  • The Plevier Family

     

  • Donna Dyke

     

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96% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $18,401 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Susan and Frank Leone

Amount Raised

$4,790

 

96% Raised of $5,000 Goal

Fundraiser Title

Karen Lyons

Amount Raised

$4,140

 

166% Raised of $2,500 Goal

Fundraiser Title

Sarah Zaman

Amount Raised

$3,076

 

123% Raised of $2,500 Goal

Fundraiser Title

Ryan Auster

Amount Raised

$3,060

 

122% Raised of $2,500 Goal

Fundraiser Title

Jeremy Martin

Amount Raised

$2,835

 

113% Raised of $2,500 Goal

Fundraiser Title

Brian Halbreich

Amount Raised

$500

Fundraiser Title

Cornelia de Lange Syndrome Foundati...

Amount Raised

$0

 

0% Raised of $17,500 Goal

Donor Comments

Donna Dyke

Donna Dyke

5 years ago

The Plevier Family

The Plevier Family

5 years ago

Morano family

Morano family

5 years ago

Kathy Duffy

Kathy Duffy

5 years ago

Payrick Quinn

Payrick Quinn

Guck luck! 5 years ago

Anonymous

ANONYMOUS

5 years ago

Dan Viglione

Dan Viglione

5 years ago

Chevon Jones

Chevon Jones

5 years ago

Yvonne Wu

Yvonne Wu

Frankie Leone 5 years ago

Rosemarie & Luigi Camia

Rosemarie & Luigi Camia

5 years ago