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Nancy Boyle's Fundraiser:

Club Mike "We Got your Back"

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Thanks for all your help
April 09, 2016

Thanks to Rita Pulice & Tara Spence. we were able to make our goal!!! Thanks to all that help make this possible. Every bit helps to get  See more
Nancy Boyle

THE STORY:

My Son Michael was just recently diagnosed with an Autoimmune disease called Ankylosing Spondylitis. Michael was an active 22 year old, until 2 ½ years ago. He started with a bad pain in his knee. He was told that it might be Lyme disease, Septic Arthritis, or chronic inflammatory disease. It took a one blood test after so many other blood test for a gene to come back, HLA-B27. Ankylosing Spondylitis is very hard to diagnose, it can take up to 10 years for signs of the disease to show. Michael already has signs showing. Here is the a little more of understanding the disease: Ankylosing spondylitis (pronounced ank-kih-low-sing spon-dill-eye-tiss), or AS, is a form of arthritis that primarily affects the spine, although other joints can become involved. It causes inflammation of the spinal joints (vertebrae) that can lead to severe, chronic pain and discomfort. In the most advanced cases (but not in all cases), this inflammation can lead to new bone formation on the spine, causing the spine to fuse in a fixed, immobile position, sometimes creating a forward-stooped posture. This forward curvature of the spine is called kyphosis. More information on kyphosis and fusion can be found in the complications section. AS can also cause inflammation, pain and stiffness in other areas of the body such as the shoulders, hips, ribs, heels and small joints of the hands and feet. Sometimes the eyes can become involved (known as Iritis or Uveitis), and rarely, the lungs and heart can be affected. See the Complications of Spondylitis: How is a Person Affected? page for more information. The hallmark feature of ankylosing spondylitis is the involvement of the sacroiliac (SI) joints during the progression of the disease, which are the joints at the base of the spine, where the spine joins the pelvis. Here is the Organization that this fundraiser is for: https://www.spondylitis.org/Learn-About-Spondyloarthritis/Ankylosing-Spondylitis#.VtDQXltv1aE.link. Michael is still working till this day. He had to put college on the back burner for a while. I'm happy to say that he is currently back in college. For 2 years Michael couldn’t get out of bed without being in horrible pain. He was lucky if he got 4 hours of sleep at night. He was put on Prednisone for 2 years. Right before Christmas Michael was approved to take Humira. We were scared of the side effects that Humira has. The medicine before this didn’t help Michael at all. On the 5th of December 2015, Michael had his first injection of humira. The next day Michael woke up and was able to walk and feel hardly no pain. He is not completly pain free, but he is a whole lot better, thanks to Humira. The humira was the best Christmas present. The happiness that my son felt was overwhelming. He was back to my Michael before this disease affected him. He has gained back a lot of his weight. He is full of life again. Before the humira was prescribed, Mike was told that he needed knee replacements, cause his knees have been destroyed by this disease. We are praying that the medicine will help keep Mike standing on his own as long as possible. I want to help the Spondylitis Association of America, so they can find a cure. Please keep Mike in your prayers. The Spondylitis Association of America (SAA) is a nonprofit organization founded in 1983 to address the needs of people affected by spondyloarthritis. Since that time, SAA has been at the forefront of the fight to promote medical research, educate both the medical community and general public and advocate on behalf of the people we serve. So all donations will go to the cause. Thank you in advance for helping.

DONATE

To This Fundraiser

$1,065

MONEY RAISED
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  • Nancy Boyle

    $20

  • Frankie and Colleen Boyle

    $250

  • Tesha and Pete

    $50

  • Justin jacobsen

    $50

  • Rosemary Mckinney (Wenig)

    $50

  • Chrisann Flannery

    $25

  • MacPherson Family

    $25

  • James carey

    $20

  • The Pietrafesa Family Nee Boyle

    $50

  • Alah Ghanim

    $25

  • Mia Ashley

    $25

  • The Hernandez Family

    $25

  • Jr and Jill

    $25

  • Ryan

    $100

  • Carol & Paul Grado

    $25

  • Meme and Mikey

    $25

  • Anonymous

     

  • Anonymous

    $100

  • Christopher Votto

     

  • Tara Spence

    $100

  • RITA CICCHETTI

    $25

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107% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $1,065 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jo-Ann Giannini-Larsen

Amount Raised

$0

Donor Comments

RITA CICCHETTI

RITA CICCHETTI

DONATION: $25

2 years ago

Tara Spence

Tara Spence

DONATION: $100

2 years ago

Christopher Votto

Christopher Votto

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

healey family 2 years ago

Anonymous

ANONYMOUS

2 years ago

Meme and Mikey

Meme and Mikey

DONATION: $25

We Love you mike 2 years ago

Carol & Paul Grado

Carol & Paul Grado

DONATION: $25

We got your Back â 2 years ago

Ryan

Ryan

DONATION: $100

Love you bro. 2 years ago

Jr and Jill

Jr and Jill

DONATION: $25

We LOVE you Mike!!! 2 years ago

The Hernandez Family

The Hernandez Family

DONATION: $25

Sending Love & Prayers 2 years ago