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Charlie Dague's Fundraiser:

cmdstudy

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BENEFITING: CURE CMD

Charlie Dague

THE STORY:

Charlie Dague is like any typical 5 year old boy.  He likes to laugh, joke, and play with his sister, cousins and friends.  In 2010 Charlie was diagnosed with a rare form of congenital muscular dystrophy known as L-CMD. L-CMD took from him the ability to stand and walk by his second birthday.  The condition is progressive in nature and is marked by significant cardiac and pulmonary complications, along with muscle wasting.

But don't tell Charlie L-CMD is supposed to slow him down.  To know Charlie is to understand that strength is not measured in muscles alone and courage comes in the smallest of packages.

CureCMD is a 100% voluntary not for profit organization.  Its mission is to find treatments and cures for a broad range of congenital muscular dystrophies (ones that start at birth).  The organization issues multiple resarch grants to fund congential muscular dystrophy studies each year.  In 2012, through the generosity of so many people, CureCMD was able to fund a portion of a research grant for a team in Paris, France that is studying Charlie's form of muscular dystrophy. The study has yielded posiitve results and much optimism.

Unfortunately funding for this study expires ths summer (July 2014). Cure CMD's funding partners for this grant are unable to pledge their portion of the grant this year, leaving a $40,000 deficit to keep the study going.

Through this fundraiser we hope to raise enough money to make up this funding shortfall and allow CURE CMD to fully fund the research for another 2 years.  If we can raise $40,000 by July 2014 the study will continue uninterrupted.

We know there are many excellent caues and a lot of people in need of help these days.  But if you have any resources to spare please consider donating to this cause.  100% of your donation will go to fund the study, as CURE CMD does not operate with overhead expenses.  It will provide a tremendous amount of hope to our family and all others facing this condition.

Thank you in advance for your donation.

Charlie, Harris, Stephanie and Farrah Dague

 

DONATE

To This Fundraiser

$35,697

MONEY RAISED
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  • Adrienne K.

     

  • Sandy

     

  • Tait Svenson

    $100

  • Penny Allyn

    $1,000

  • d.a.

    $5,000

  • Anonymous

    $10

  • Walds

    $250

  • Colleen

     

  • Anonymous

    $500

  • Anonymous

    $25

  • Sharon O'Dea

    $50

  • Emilie Maclean delehanty

    $40

  • The Pollak family

    $100

  • Lorraine Valestuk

    $25

  • The Simeon Family

    $25

  • katy veysman

    $50

  • Hawkanson Family

    $250

  • Beth

     

  • Blair

    $30

  • Anonymous

    $50

  • The Nardolillo Family

    $100

  • Carmen Irons

    $25

  • Ruben y Made

     

  • Richard Collado

    $10

  • Carlos & Daisy

    $200

  • Miriam Guerrrero

    $50

  • Todd and Deb Tucker

    $100

  • Dr. Jose & Sandra Conde

    $100

  • Denny and Jessi DeLong

    $50

  • Michael and Andrea Koven

    $100

  • Gilda Fair & Family

    $25

  • Abbey Farbstein and Joe Herd

    $100

  • Danielle Littlefield

    $25

  • Paul Rutherford

    $100

  • Greg Namoff

    $100

  • Neil & Deborah Shelley

    $100

  • Judy and Domm

    $100

  • The Kulbida Family

    $250

  • Shear Gold Hair Design

    $50

  • Kinney family

     

  • Kevin and Lynn Hickey

    $1,000

  • Jeffrey D.

     

  • larry and mary dague

    $100

  • Catherine Guillarmod

    $100

  • Mike and Sharon Hamant

    $100

  • The Campanella Family

    $100

  • Bannon Heraghty

    $50

  • The Hayden Family

    $500

  • Jim McGowan

    $500

  • Kenneth Hayden

    $100

  • Donald W. Boyajian

    $500

  • Anonymous

    $25

  • Michael & Linda Breault

    $5,000

  • Ryan and Brooke Donovan

    $500

  • Farrah Dague

    $1,000

  • Anonymous

    $1,000

  • E Tucker and Henry Edwards

    $100

  • Matt & Vanda Berman

    $1,000

  • The Torkelson Foundation

    $250

  • Denise Buckley

     

  • Christie Calahan

    $50

  • The Lusardi family

    $100

  • Catherine & Kenneth Mooney

    $50

  • DeSoyza Family

    $200

  • Mike Reilly

    $1,000

  • Laura Sprague

    $500

  • Bev & Bob Berman (Matt's folks)

    $1,000

  • Mary and Patrick Mallon

    $50

  • Noah A. Douglas

    $100

  • Judy and Joe Darweesh

    $200

  • Carmen Ma

    $20

  • Lesly Gonzalez

    $100

  • Shannon Spratt

    $25

  • Kyle and Logan Roth

    $200

  • Michele (Levy) Thomas

    $50

  • Andrea & Joseph Bridge

    $50

  • Nancy Marcone

    $30

  • Julie/Mark/Alejandro Gonzalez

     

  • Anne Rieschick

    $200

  • Anonymous

     

  • Anonymous

    $5,000

  • Wendy, Leah and Gabriel Rosario (Levy)

    $100

  • Village Green Elementary School

    $1,649

  • Village Green Elementary School

    $550

  • Jimmy Monica

    $100

  • Brian and Meg

    $200

  • Tom and Eileen Moylan

    $50

  • Eileen and Matt Vlieger

    $50

  • Eileen and Matt Vlieger

    $50

  • The Homer Family

    $100

  • Anonymous

    $50

  • Cummings Family

    $200

  • The York-Vascik Family

    $50

  • The Elfeldts

    $200

  • Ed Elfeldt

    $100

  • Anonymous

     

  • The Donnaruma Family

    $100

  • Meghan Deltry

    $100

  • Molly Dunne

    $200

  • Mike Rizzo

    $25

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89% Raised of $40,000 Goal

Fundraise for this Campaign

The Team: $35,697 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Charlie Dague

Amount Raised

$35,497

 

89% Raised of $40,000 Goal

Fundraiser Title

Neil & Deborah Shelley

Amount Raised

$200

Donor Comments

Mike Rizzo

Mike Rizzo

DONATION: $25

9 months ago

Molly Dunne

Molly Dunne

DONATION: $200

2 years ago

Meghan Deltry

Meghan Deltry

DONATION: $100

3 years ago

The Donnaruma Family

The Donnaruma Family

DONATION: $100

3 years ago

Anonymous

ANONYMOUS

3 years ago

Ed Elfeldt

Ed Elfeldt

DONATION: $100

3 years ago

The Elfeldts

The Elfeldts

DONATION: $200

3 years ago

The York-Vascik Family

The York-Vascik Family

DONATION: $50

What a great and worthy cause. 3 years ago

Cummings Family

Cummings Family

DONATION: $200

3 years ago

Anonymous

ANONYMOUS

DONATION: $50

3 years ago