BENEFITING: CURE CMD
Charlie Dague is like any typical 5 year old boy. He likes to laugh, joke, and play with his sister, cousins and friends. In 2010 Charlie was diagnosed with a rare form of congenital muscular dystrophy known as L-CMD. L-CMD took from him the ability to stand and walk by his second birthday. The condition is progressive in nature and is marked by significant cardiac and pulmonary complications, along with muscle wasting.
But don't tell Charlie L-CMD is supposed to slow him down. To know Charlie is to understand that strength is not measured in muscles alone and courage comes in the smallest of packages.
CureCMD is a 100% voluntary not for profit organization. Its mission is to find treatments and cures for a broad range of congenital muscular dystrophies (ones that start at birth). The organization issues multiple resarch grants to fund congential muscular dystrophy studies each year. In 2012, through the generosity of so many people, CureCMD was able to fund a portion of a research grant for a team in Paris, France that is studying Charlie's form of muscular dystrophy. The study has yielded posiitve results and much optimism.
Unfortunately funding for this study expires ths summer (July 2014). Cure CMD's funding partners for this grant are unable to pledge their portion of the grant this year, leaving a $40,000 deficit to keep the study going.
Through this fundraiser we hope to raise enough money to make up this funding shortfall and allow CURE CMD to fully fund the research for another 2 years. If we can raise $40,000 by July 2014 the study will continue uninterrupted.
We know there are many excellent caues and a lot of people in need of help these days. But if you have any resources to spare please consider donating to this cause. 100% of your donation will go to fund the study, as CURE CMD does not operate with overhead expenses. It will provide a tremendous amount of hope to our family and all others facing this condition.
Thank you in advance for your donation.
Charlie, Harris, Stephanie and Farrah Dague