As you know, fighting against cystic fibrosis has been a priority for me for a long time. Over the past 18 months, I've been helping to launch a new charity in the fight against CF called Coach-Ed Inc. and our work has been very well received. We were formed as a legacy for Edward Sayer, a great friend who lost his battle against CF at the age of 22. Coach-Ed’s mission is to encourage, enable and support cystic fibrosis patients to live beyond the limitations of the disease.
Through varied (and evolving) programming, including athletic sponsorship, scholarships, group events, adventure activities, and fundraising efforts, Coach-Ed emphasizes healthy, active, full lifestyles for cystic fibrosis patients. We also aim to increase social awareness of cystic fibrosis and the benefits of exercise, athletics and teamwork as part of a responsible approach to treatment management. Our programs target this active lifestyle, as well as provide a sense of community, support and as much levity and fun as possible for CF-ers.
Being able to participate in the NYC Half Marathon is a great opportunity for Coach-Ed and aligns with our mission. We will have two cystic fibrosis patients running in the NYC Half with us, both having received double lung transplants. They, in addition to Edward, are my motivation to run [because I really do not enjoy running!]. I hope you will support me in my fight against cystic fibrosis and all 13.1 miles!