As many of you know, I was already in my thirties when diagnosed with cystic fibrosis, a disease notorious for destroying children's lungs. That's why I chose to run the NYC Half Marathon with Team Coach-Ed Inc, which was formed as a legacy for Edward Sayer, a young man who lost his battle against CF at the age of 22.
Coach-Ed's mission is to encourage, enable and support cystic fibrosis patients to live beyond the limitations of the disease. That purpose resonates with me because, not knowing I had CF my entire young adult lifehood, I participated in all sorts of "impossible" athletics before the condition was revealed to me. I ran marathons, biked from Bryce Canyon to Zion, hiked peaks the of the Alps, until all I could do was move in slow motion on a treadmill with an oxygen tank while waiting more than a year to receive my double lung transplant. Who knows how much those activities helped me to survive.
Through varied and evolving programming, including athletic sponsorship, scholarships, group events, adventure activities, and fundraising efforts, Coach-Ed emphasizes healthy, active, full lifestyles for cystic fibrosis patients. They also aim to increase social awareness of cystic fibrosis and the benefits of exercise, athletics and teamwork as part of a responsible approach to treatment management.
Thank you in advance for your support … and if you're in town ... hoping to see you along the course on March 17.
Coach-Ed Inc. is a 501(c)(3) non-profit charitable organization recognized by the U.S. Internal Revenue Service. All donations made to Coach-Ed Inc. are deductible from the donor’s federal income taxes.
For more information on Coach-Ed, please visit http://www.Coach-Ed.org