Diagnosed with cystic fibrosis at just 6 weeks of age, I've been "running the race" against this disease for literally as long as I can remember. The difference is that today, thanks to the wonderful advances in CF research and the miracle of organ donation, I am able to run it for real, and I am thrilled to be supporting Coach-Ed Inc. in its mission to support and encourage people like myself to live beyond the limitations of cystic fibrosis.
Coach-Ed's motto is "be outstanding." It is based on the premise that each and every one of us, regardless of our real or perceived challenges, has the power to do something truly remarkable. And it is in that spirit that I ask you to help me meet my goal of assisting this foundation in continuing its amazing work. Because run, walk, or crawl (believe me, it's possible!) those of us with cystic fibrosis are committed to making it across the finish line and beating this disease. And we would like nothing more than to have you on our team.
Coach-Ed Inc. is a small new charity with a strong purpose and big goals. We were formed as a legacy for Edward Sayer, a young man who lost his battle with cystic fibrosis at the age of 22. He was a fighter, a scholar, an athlete, a true friend, and a coach. His sister, mother and friends grouped together to form Coach-Ed in his memory, to help cystic fibrosis patients live outstanding lives, just as Ed did.
Coach-Ed’s mission is to encourage, enable and support cystic fibrosis patients to live beyond the limitations of the disease. Our programs provide direct support to cystic fibrosis patients and their families – nearly 100% of our donations go directly to our CF-ers, by way of specific- need grants and scholarships. To date, we have funded summer sports camp, helped fulfill a dream of attending the London Olympics, successfully assisted a young man with CF become a certified personal trainer, provided clothing and supplies to a family in need, helped re-build a home devastated by Hurricane Sandy, provided college trip advice, and created a virtual support group for patients.
For more information on Coach-Ed, please visit http://www.Coach-Ed.org.