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Congenital MelanocyticNevi

Organized by: Lora Gauss

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THE STORY:

Lily is our second child and she was born on March 19, 2014. My daughter was born with a very rare skin disorder called Congenital Melanocytic Nevi also known as CMN. She had what would be considered the GIANT TYPE It's so rare that there are only 600 reported case around the world. Lily has two which makes here extremely unique. She has a large Nevis on her face and she has what is called a Cape which covers most of her back. We are beginning surgery for Lily Oct 2014 and we have located the top doctors on the planet to be in charge of Lily's care. My family is in need of your financial help. Any size donation is helpful. Lily will need multiple surgeries over the next few years all which are located in CHICAGO. Lily will first get skin expansion on her forehead and on her Back. The Doctor will put expanders in her body around her Giant Nevi and every 10 days we will have to inject the expanders with more saline to force her skin to stretch. After approximately 3 months then we go back to the Hospital in Chicago and they remove her expanders and then begin to replace the Nevus by cutting out the area and replacing it with the newly stretched Nevus free skin. Then there is a 4 month period of healing. soon after, this process will be repeated until they are done. BETWEEN 10 day stays at the hospital multiple times a year, and her surgeries, travel and needed time off of work your donation would be not only helpful it could be life saving and life changing.

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Organized by

Lora Gauss

This is a direct to organizer fundraiser.

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