BENEFITING: C&S PATIENT EDUCATION FOUNDATION
EVENT DATE: Sep 22, 2012
Everybody !! I encourage you to help Baby Jakob and his family. A really little bit. . . from a WHOLE LOT of people can TRULY move mountains.
Jakob and his parents Kelli Grabowski and Wayne Holt need your prayers. My best friend's little 2 year old son has a spinal injury in his neck and just found out that they need to do surgery on him and its a dangerous surgery. He has a VERY RARE condition known as Chiari malformation.
CMs may develop when the bony space is smaller than normal, causing the cerebellum and brain stem to be pushed downward into the foramen magnum and into the upper spinal canal. The resulting pressure on the cerebellum and brain stem may affect functions controlled by these areas and block the flow of cerebrospinal fluid (CSF) — the clear liquid that surrounds and cushions the brain and spinal cord — to and from the brain.
All this news is very sudden, and any help will be great! I am trying to ease the stress of any financial woes the family are about to endure. This is truly a life changing health procedure and baby Jakob will more than likely need physical therapy after this invasive surgery.
Jakob loves the aquarium and all the fishes. He frequently visits the Newport Aquarium with his Big Sister Hannah, who is 8. He has his favorite stuffed seahorse with him at Kosairs Children Hospital as he awaits his surgery. As Grandpa Grabowski puts it,
"He's the greatest little guy and we are all hurting. He's a tough little man and very brave and I know he will kick this in the ass. After all he's got Grabowski blood in him. Thanks ahead for all your prayers."
It would be so great to see everyone come together and relieve the medical expenses this family is about to encounter during surgery and therapy during recovery for baby Jakob. This is something that will take an EXTENSIVE hospital stay for Jakob as he is monitored. The family was due for summer vacation until the discovery of Jakob's condition. Let's help them please and create a "halo of hope" to get them back on track.
FOR LOUISVILLE KENTUCKY FRIENDS
OR NEAR BY NEIGHBORS!!!!
Sept.22nd there is a walk in support of Conquer Chiari. You can Sponsor by using the link below but it would be great to have people volunteer as a $25 donation will provide you with a shirt in support of Jakob.
Waterfront Park - Big Four Lawn
601 River Road
Louisville, KY 40202
September 22nd, 2012
6:00 PM -
Team Name: Friends of Jakob
If you would like to give to the hospital where Jakob is staying you can do so at this link ---> http://www.kosairchildrens.com/OnlineDonations