BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
I've always dreamed of being on the CDLS running team since I was younger! Now I have the chance to be on the team and support the foundation that has supported my family for 27 years. As most of you know my twin, Jessica was diagnosed with Cornelia de Lange Syndrome when we were born. Knowing how much support is needed I want to help the foundation as much as I can to increase the information and find more children that have CDLS.
Cornelia de Lange Syndrome Foundation, Inc. wrote -
Inspired by individuals with Cornelia de Lange Syndrome (CdLS), Team CdLS runners take on the challenge to better the lives of people with the syndrome—many of whom struggle to talk, eat and walk. There is no cure for CdLS, but you can help ensure services and programs for families remain by supporting the CdLS Foundation—the only organization of its kind in the country. On Sunday, November 5, Team CdLS will take on New York City once again for the CdLS Foundation.