BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
This past January, I set a goal to run a half-marathon in 2017. A few days later, the opportunity came to run the NYC Half for Team CdLS on March 17th and I decided to go for it. Prior to signing up, I hadn't run more than 2 miles in over a year, so the distance felt a little ambitious for me, but I really, really wanted to prove to myself that I could do it. Finishing my first half marathon and raising over $2300 for the CdLS Foundation and for my Sofia was one of the most challenging but rewarding experiences of my life. Fortunately, I caught the running bug and have kept up with my running this past year. A few weeks ago, the opportunity came to run NYC again in November and I signed up without even thinking twice!
I will be running the 2017 NYC Marathon in honor of my younger sister, Sofia and in honor of my parents, Denise and Frank, and my sisters, Mimi and Lulu! Sofia was diagnosed with CdLS shortly after she was born, and she has been the brightest part of our world every single day since. She continuously reminds us what's important in life and inspires us all always to be the best version of ourselves. No matter how tough things may seem, remembering that Sofia loves and supports me is the reason that I push through, especially when I'm running. Our experience with CdLS has been challenging and rewarding and refreshing and exciting every single day for the past 16 years, and I am so excited to be running in honor of the journey that the six of us are on together! Prior to this year, I would've never imagined myself running 26.2 miles, but I will once again be checking something off my bucket list with my sisters and my parents as my biggest cheerleaders!!
My goal for this race is to raise over $2500 for the CdLS Foundation! The Cornelia deLange Syndrome Foundation is a family support organization that helps to ensure early and accurate diagnosis of CdLS, promote research into the causes of the syndrome, and provide families of individuals diagnosed with CdLS with the resources to make informed decisions throughout their lives. It is an honor and a privilege to run again for a cause that has been such an integral part of my life for the past 16 years.
To follow along as I train, check out my instagram account @iz_runs26.2!
Thank you again for all of the love and support!!!! Sofia and I can't wait to hit the streets of NYC!!
Cornelia de Lange Syndrome Foundation, Inc. wrote -
Inspired by individuals with Cornelia de Lange Syndrome (CdLS), Team CdLS runners take on the challenge to better the lives of people with the syndrome—many of whom struggle to talk, eat and walk. There is no cure for CdLS, but you can help ensure services and programs for families remain by supporting the CdLS Foundation—the only organization of its kind in the country. On Sunday, November 5, Team CdLS will take on New York City once again for the CdLS Foundation.