BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
Last September I was fortunate enough to grow my family when I married my wife Tessa. Among my new family members is Taylor Nelson, one of Tessa’s four brothers. Taylor and I are the same age, 27, and have gotten to know each other pretty well over the course of the past few years. Taylor has Cornelia de Lange Syndrome (“CdLS”), a rare genetic disorder that can cause a variety of physical, cognitive, and medical challenges. Taylor’s impact on my new family is a huge part of what makes them, and him, so special.
On November 5th, 2017, Tessa, Steve (Taylor and Tessa’s father), and I will participate in the New York City marathon, running alongside many other members of Team CdLS for the purpose of supporting the CdLS foundation. The CdLS foundation serves people like Taylor, and families like Tessa’s, by providing education and support to allow them to pursue healthy, happy lives. I am humbled to have the ability and means to run for such a worthy cause, and am grateful for any support, monetary or otherwise, you are able and willing to contribute.
Thank you!! For more information about Cornelia de Lange or the Foundation, visit www.cdlsusa.org.
In the CdLS foundations's own words:
"Inspired by individuals with Cornelia de Lange Syndrome (CdLS), Team CdLS runners take on the challenge to better the lives of people with the syndrome—many of whom struggle to talk, eat and walk. There is no cure for CdLS, but you can help ensure services and programs for families remain by supporting the CdLS Foundation—the only organization of its kind in the country. On Sunday, November 5, Team CdLS will take on New York City once again for the CdLS Foundation."