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Tessa Rose's Fundraiser:

Team CdLS: TCS New York City Marathon

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Tessa's Photo
Tessa's Photo
Tessa's Photo
Tessa Rose

THE STORY:

On November 5th, in addition to many other loving and devoted supporters of this cause (including my dad and husband), I will be running with Team CdLS at the New York City Marathon. Cornelia de Lange Syndrome has affected my family in a significant way and I am so honored to be supporting an organization devoted to people with this diagnosis and their loved ones. 

My brother Taylor is three years older than me. He loves collecting church directories, watching action scenes from "Walker, Texas Ranger", and counting the number of old people with canes at the Village Inn. Taylor has Cornelia de Lange Syndrome, a rare genetic disorder that can cause a variety of physical, cognitive, and medical challenges. Growing up with Taylor has formed my character and my purpose, and I feel incredibly lucky to be his sister. 

We have been so fortunate that Taylor has grown into a healthy and happy young man with very few medical issues. Still, a diagnosis of CdLS was a scary and isolating thing for my parents. It has meant constant care and attention in order to provide Taylor with the support he needs to be successful. The CdLS Foundation serves people like Taylor and families like ours, ensuring that no family feels alone after receiving this diagnosis. 

I am so proud to run on behalf of Taylor and the CdLS Foundation. I would be incredibly grateful for your financial and emotional support. THANK YOU!


For more information about Cornelia de Lange or the Foundation, visit www.cdlsusa.org. 

DONATE

To This Fundraiser

$700

MONEY RAISED
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  • Anonymous

    $50

  • Steve, Kathy, and Caitlin Mitchell

    $50

  • Tom and Carolyn Espel

     

  • Grace and Sam

    $50

  • Anonymous

    $50

  • Katita

     

  • Cathy Evenson

    $10

  • Joan & Mark Doerner

    $100

  • Weisenberger's

    $50

  • Martens

     

  • Alison Serot

     

  • Sandy and Dave Forster

    $100

  • Chuck

    $50

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14% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $7,795 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Katie Giberson

Amount Raised

$2,875

 

58% Raised of $5,000 Goal

Fundraiser Title

Ava Frank

Amount Raised

$2,144

 

36% Raised of $6,000 Goal

Fundraiser Title

Anna Smith

Amount Raised

$1,441

 

58% Raised of $2,500 Goal

Fundraiser Title

Tessa Rose

Amount Raised

$700

 

14% Raised of $5,000 Goal

Fundraiser Title

Isabel Teixeira

Amount Raised

$350

Fundraiser Title

Justin Rose

Amount Raised

$235

 

5% Raised of $5,000 Goal

Fundraiser Title

Cornelia de Lange Syndrome Foundati...

Amount Raised

$50

 

0% Raised of $25,000 Goal

Fundraiser Title

Lizzie Davidson

Amount Raised

$0

 

0% Raised of $5,000 Goal

Donor Comments

Chuck

Chuck

DONATION: $50

Go do it! 2 weeks ago

Sandy and Dave Forster

Sandy and Dave Forster

DONATION: $100

best wishes to you as you run...you are the best..... 2 weeks ago

Alison Serot

Alison Serot

3 weeks ago

Martens

Martens

3 weeks ago

Weisenberger's

Weisenberger's

DONATION: $50

3 weeks ago

Joan & Mark Doerner

Joan & Mark Doerner

DONATION: $100

3 weeks ago

Cathy Evenson

Cathy Evenson

DONATION: $10

3 weeks ago

Katita

Katita

Don't poop yourself! 3 weeks ago

Anonymous

ANONYMOUS

DONATION: $50

Get it! Beat Justin. 3 weeks ago

Grace and Sam

Grace and Sam

DONATION: $50

3 weeks ago