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Grace Smisloff's Fundraiser:

CdLS Foundation TCS New York City Marathon 2016

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Grace Smisloff

THE STORY:

Friends & Family,

On November 6th, I will be running my 5th marathon as part of Team CdLS, in honor of my brother Will and all other individuals living with Cornelia de Lange Syndrome. This year we’re tackling the NYC marathon. My motive as always is to  spread awareness of this rare genetic disorder and to raise money for the CdLS Foundation, one step at a time.  

Marathon training is demanding physically, mentally, and emotionally. There are times during marathon training when I am 15 or more miles into a run, asking myself, “Why am I putting myself through such an excruciating task?” It is during these moments of pain and exhaustion that I remind myself why I run: For my brother Will. Growing up with a brother with disabilities, I watched Will face many obstacles and medical challenges. With support and information provided by the CdLS Foundation, Will was able to overcome these difficulties. The temporary pain felt from running 26.2 miles is miniscule compared to the pain and difficulties that many children with CdLS feel throughout their lives.

Running marathons is my way to support the CdLS Foundation and all that they do for families like mine, nation-wide. The Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome. Through a variety of research programs and activities, the CdLS Foundation plays a major role in advancing clinical and basic scientific knowledge about the syndrome which is vital to those living with this incurable disease.  

Please help me make this 26.2 mile race a huge success in bringing resources and support to my fellow CdLS families. Any donation is greatly appreciated, no matter how big or small. For those of you who continue to support my brother and I every year, I can’t thank you enough. I am forever grateful to you all!

XO Grace Smisloff

$11,094

MONEY RAISED
  •  
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  • Your brother Will

    $100

  • Julie

    $10

  • Marisa Gladstone

    $50

  • Hillary & Brian Guadagno

    $100

  • Gregg Frank

    $520

  • M.nowak

    $50

  • Jennifer and Dani Armstrong

    $100

  • The Lindsay's

    $100

  • Mark Corbo

    $100

  • Paul Lambert

    $100

  • The Dempseys

    $100

  • The Hughes Fam

     

  • Matt Foley

     

  • Allison Dolin

    $100

  • Meredith, Jim and Haynes Woolford

     

  • Doc Frosty

    $250

  • Julie and Roy Gonella

    $500

  • Whitney H.

    $20

  • Meg Crozier

    $50

  • Amy Pinckney

    $50

  • Christina Vail

    $25

  • Bonnie Treiber

    $50

  • Jenny

     

  • Rachel Smisloff

    $100

  • Patrick Chappelle

    $25

  • Katie Bone

     

  • Raj-Mita, Inc.

    $150

  • M Beson

    $25

  • Megan Dority

    $25

  • Liz Frank

    $50

  • Stephanie Jones

    $100

  • The Patient Experience Project

    $100

  • Herrington Family

    $25

  • Lynnette Miller

    $100

  • George & Susan

    $200

  • Chris and Mary Ann Hailand

    $50

  • Lester Stuzin

    $50

  • eBizDocs, Inc.

    $500

  • Paul Zwynenburg

    $50

  • Zak & Tara

    $50

  • Tracey Voila

    $125

  • Katie Rich

    $50

  • Beth Loewenstein

    $50

  • Nicole Pitaniello

    $50

  • Automasters Car Care LLC

    $100

  • C&C Unlimited, Inc.

    $100

  • David Fowler

    $50

  • Melissa Villa Azam

    $50

  • Elaine Lambert

    $25

  • Dan Kennelly

    $50

  • Andrew & Sascha

    $50

  • Joe Favat

    $50

  • The Quigley Family

    $50

  • Katie Whalen

    $50

  • Deb Tillman

    $25

  • Kathy and Peter Wagner

    $50

  • michael freedman

    $100

  • Ryzer

    $100

  • Chendell Aufiero

    $40

  • Shelly Champion

    $25

  • Aunt Lorrie and Uncle Mike

    $200

  • Christine Bidds

    $100

  • Joe & Natalie Coughlin

    $500

  • G.E. Gift Match

    $200

  • Emmett Mehan

    $50

  • Tim Whalen

    $100

  • Nay and poppop

    $262

  • Patricia & Paul Fingar

    $100

  • The Mazzariello Family

    $50

  • Strek's Inc.

    $500

  • Anchor Angency

    $260

  • Chris Walsh

    $25

  • Shane Sanders

    $100

  • Cathy & Derik

     

  • Farrell Bros Inc.

    $1,200

  • Joan Swart Pena

    $100

  • Kelly Dolin

    $200

  • Aunt Kay

    $100

  • Uncle Mark

    $20

  • Gerome Technologies, Inc.

    $625

  • Sharon & Gregg

    $100

  • David Kosla

    $25

  • The Gawrys Family

    $25

  • Jordan Johnson

    $100

  • Christopher Peters

    $25

  • Paul Lambert

    $92.50

  • Zak Westbrook Tara Wheeler

    $92.50

  • Ryzer

    $92.50

  • Tera Patenaude

    $25

  • Michael Fingar

    $100

  • Susan and David Fowler

    $250

  • James Patrick

    $25

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222% Raised of$5,000 Goal

The Team: $41,890 TOTAL RAISED SO FAR

Fundraiser Title

Grace Smisloff

Amount Raised

$11,094

 

222% Raised of$5,000 Goal

Fundraiser Title

Rich Flaherty

Amount Raised

$10,737

Fundraiser Title

Katie Rich

Amount Raised

$7,109

 

284% Raised of$2,500 Goal

Fundraiser Title

Ava Frank

Amount Raised

$5,656

 

94% Raised of$6,000 Goal

Fundraiser Title

Pamela Rieser

Amount Raised

$3,000

 

120% Raised of$2,500 Goal

Fundraiser Title

Dave Ghabrial

Amount Raised

$2,052

Fundraiser Title

Niclas Gustafsson

Amount Raised

$880

Fundraiser Title

Fredric Gustafsson

Amount Raised

$676

 

27% Raised of$2,500 Goal

Donor Comments

James Patrick

James Patrick

DONATION: $25

2 years ago

Susan and David Fowler

Susan and David Fowler

DONATION: $250

Best of luck! 2 years ago

Michael Fingar

Michael Fingar

DONATION: $100

Where there's a Will there's a way. Go grace!! 2 years ago

Tera Patenaude

Tera Patenaude

DONATION: $25

So proud of you good luck!!! 2 years ago

Ryzer

Ryzer

DONATION: $92.50

2 years ago

Zak Westbrook Tara Wheeler

Zak Westbrook Tara Wheeler

DONATION: $92.50

Good luck ! 2 years ago

Paul Lambert

Paul Lambert

DONATION: $92.50

2 years ago

Christopher Peters

Christopher Peters

DONATION: $25

101 2 years ago

Jordan Johnson

Jordan Johnson

DONATION: $100

2 years ago

The Gawrys Family

The Gawrys Family

DONATION: $25

2 years ago