Skip to content
joannathanasatosbard's profile image - click for profile

Joann Bardis' Fundraiser:

Team CdLS NYC Half Marathon 2016

Joann's Photo
Joann's Photo
Joann's Photo
Joann Bardis

THE STORY:

Thank you for visiting my fundraising page and for supporting the CdLS Foundation in celebration of my son Stelios, the amazing little boy who taught me the importance of focusing on what can be rather than on what can’t.  I never thought I could run a marathon and for years, I had been helping the CdLS Foundation with their fundraising efforts by being a Phantom Runner—not this year!  This year, I decided to join Team CdLS and run the NYC Half Marathon.  On March 20, 2016, I will be running in celebration of Stelios and his CdLS friends and in memory of the CdLS angels that we lost this year.  

My son Stelios was diagnosed with CdLS 9 years ago. Cornelia de Lange Syndrome (CdLS) is a little-known genetic condition. It causes a range of physical, cognitive and medical challenges. Individuals often struggle to perform everyday tasks that we take for granted, like walking, talking and eating. There is no cure. A day after he was born, the doctors broke the news to us that Stelios had CdLS. It was heartbreaking to hear that the beautiful little boy we brought into this world was going to have a life much different than we ever imagined. Doctors, books and different websites listed all the things Stelios wouldn't be able to do but year after year, he continues to prove everyone wrong. Stelios is an amazing little boy who is always smiling, no matter how difficult things are for him. Unlike children without CdLS, Stelios has to struggle and work harder to do even the simplest of tasks and most of the day-to-day things (that most of us take for granted) are a challenge for him. The little boy who we were told would probably never walk started walking on his own over a year ago and he has just been getting better and better at it.  Stelios has recently taken to getting up on his own and walking around his school and our house without assistance.  This is a huge accomplishment for my little boy. His personality has also changed and he is showing signs of being a typical stubborn little independent 9 year old!  He is attending a school that specializes in special needs students and he just loves it there.  The teachers and staff are amazing and do so much for him and help him do the many things doctors told us he wouldn’t be able to do.  It is truly amazing how far he has come and we will continue to focus on what he can do rather than what he can not. Some CdLS families are not as fortunate as we are so please make a donation to help me and the CdLS Foundation change the lives of others.

I am so honored to be part of the Team CdLS team and running for such a great organization.  With my biggest fan, Stelios, and his buddy Luca cheering me on while running with my new friend and fellow CdLS mom, Dena, I will complete the race and hopefully raise a significant amount of funds for the CdLS Foundation. Please help me in my fundraising efforts with a donation--any amount, big or small is appreciated by everyone at the CdLS Foundation and by all the CdLS families. Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Thank you for being a part of this fundraising experience. Your support means a lot, not just to me, but to the children with CdLS and their families.  I can not thank you enough for all of your support!

Don't forget to forward this to anyone who you think might want to donate too!

Thank you!

Joann Bardis 

$4,245

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • The Dewalters Family

     

  • Becca Schendel Norris

    $100

  • Koko

    $25

  • Bernie (softball)

    $100

  • Zoom Zoom!

    $25

  • Joseph Family

    $25

  • Jacqueline & Ralph Marchione

    $100

  • Grancio Family

    $100

  • Daddy Day Care

    $100

  • Stelios Fan

     

  • Anonymous

    $250

  • Anonymous

     

  • The Saulino Family

    $200

  • Mauro Family

    $50

  • The Shah Family

    $100

  • Ryan Shah

    $25

  • Devin Shah

    $25

  • Vellios Family - NJ

     

  • Redmen Baseball

    $250

  • Fiorillo family

    $50

  • Brian Blue Bombers

    $25

  • Tyler Koenig

    $25

  • The DiGirolomo Family

     

  • Antonia Pylarinos

    $50

  • Katsiavos Family

    $50

  • Cousins Dimitri and Angelina

    $100

  • Maria Athanasatos Glenis

    $250

  • Tsividakis Family

     

  • Nassau Door & Window/The Asaro Family

    $150

  • Garofalo Family

    $50

  • Ed Christine Elizabeth Marino Pawlowski

    $250

  • gabby & andy

    $50

  • Anita Mikus

    $50

  • Anonymous

    $50

  • Pointer Family

    $100

  • Vaso Demacopoulos Gallis

    $100

  • Ken and Ellen

     

  • Joe & Brandon Moy

    $100

  • Koutsoulidakis, A

    $30

  • The Jones Family

    $50

  • For My Little Warrior

    $100

  • Debra Neiderfer, Veritext Court Reporting

    $200

  • Michael & Susan

    $100

  • The Morrison Family

    $50

  • The Cowan Family.

     

  • Apostole & Katina Papaioannou

    $100

  • The Winneker Family

    $100

  • Anonymous

    $100

  • The Newell Family

     

  • Caren Sarno, Charles Hon and Anastasia Kaup

    $50

  •  
  •  
  •  

The Team: $10,185 TOTAL RAISED SO FAR

Fundraiser Title

Joann Bardis

Amount Raised

$4,245

Fundraiser Title

David Fowler

Amount Raised

$2,900

Fundraiser Title

Dena Borgia

Amount Raised

$1,765

Fundraiser Title

Jaclyn Gilbert

Amount Raised

$1,075

 

108% Raised of $1,000 Goal

Fundraiser Title

Cornelia de Lange Syndrome Foundati...

Amount Raised

$200

 

4% Raised of $5,000 Goal

Fundraiser Title

Carolyn McNaughton

Amount Raised

$0

Fundraiser Title

Anita Mikus

Amount Raised

$0

Fundraiser Title

Caroline Shumway

Amount Raised

$0

Donor Comments

Caren Sarno, Charles Hon and Anastasia Kaup

Caren Sarno, Charles Hon and Anastasia Kaup

DONATION: $50

Celebration of Stelios 3 years ago

The Newell Family

The Newell Family

3 years ago

Anonymous

ANONYMOUS

DONATION: $100

3 years ago

The Winneker Family

The Winneker Family

DONATION: $100

3 years ago

Apostole & Katina Papaioannou

Apostole & Katina Papaioannou

DONATION: $100

In celebration of Stelios Bardis. 3 years ago

The Cowan Family.

The Cowan Family.

For our friend Steli 3 years ago

The Morrison Family

The Morrison Family

DONATION: $50

3 years ago

Michael & Susan

Michael & Susan

DONATION: $100

Joanne and Michael you are true heroes and may God continue to bless you and your family 3 years ago

Debra Neiderfer, Veritext Court Reporting

Debra Neiderfer, Veritext Court Reporting

DONATION: $200

3 years ago

For My Little Warrior

For My Little Warrior

DONATION: $100

3 years ago