A message from the 2016 Honorary Chair and his family:
April 18, 2016
BENEFITING: CYSTIC FIBROSIS FOUNDATION
EVENT DATE: Apr 22, 2016
What is the Corporate Cup?
The Corporate Cup encourages friendly competition while building employee morale and team spirit! Over a two day period, you will be participating in various team sports and challenges. A team can consist of up to 35 players with only one team participating per event.
Teams that fundraise will be able to earn extra points! Points will be awarded to the top 3 teams in each individual event. Awards will be presented to the top 3 company teams in each event and the top 3 company teams in overall scores. The company with the most points at the end of the games will receive a traveling trophy with their company name engraved on it.
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
A message from The Freund's:
First, my family and I would like to thank you! You all are truly WINNERS in our eyes! Well, I guess we are the winners to be blessed to have you on our team fighting to find a cure for CF (Cystic Fibrosis)!
Our youngest son, Brayden was diagnosed with CF when he was an infant. In fact, he had a five hour long iliostomy surgery within the first 36 hours of his life. Our beautiful baby boy had been literally starving because of a blockage in his intestinal tract from the little milk he had first taken. You see, many people think that CF is a pulmonary disease only, but it holds other dangers. Brayden was diagnosed with an enzyme deficiency which led the doctors to diagnose him with CF. We were blessed because it to was discovered so early in his life. There have been many trials and other scary times, but many blessings. We are thankful for the Cystic Fibrosis Foundation and for people like you who give of their time and finances. Brayden will turn nine this month! Miraculously, he is doing well. There was in his doctors’ lifetime a period where children didn’t live to see Kindergarten nor did their parents get to see them go to Kindergarten. But, in Brayden’s lifetime he has been given the gift of being in two research studies. One of them was for a treatment called Hypertonic Saline. It has been so wonderful! Now, the research that is being done is so on the cutting edge that it is helping with research for other diseases! So, we all win!
Brayden does treatments for his lungs two to four times a day. They last about an hour each for the two regular maintenance treatments. His brother is usually faithfully by his side. We sometimes even call to them, “Boys, It’s time to do your treatment.” By God’s grace, we have determined that what happens to one of us as a family happens to us all and we are in it together. Brayden takes ten enzymes pills whenever he eats or drinks. He also takes a variety of other pills. Our family should also probably buy stock in sanitizers.
People sometimes say to me, “He looks fine to me. “ I should probably be thankful, but I will confess sometimes it hurts. I even had one of Shay’s (my older son) teachers say to me, “What’s the big deal, what could happen that has Shay so upset?” All I could answer was, “The worst.” Then I got in the car and cried. Partly, because I realize how blessed we have been and partly because I don’t like to think about it.
Anyway, all of this to give you an idea of how important the Corporate Cup is to us . . . and others like us and to let you know how MUCH WE APPRECIATE YOUR SUPPORT!
WE HOPE YOU HAVE A GREAT TIME HELPING ALL OF US!!!
THANK YOU SO MUCH!
Denise, Britt, Shay, and Brayden Freund
(Picture of Shay and Brayden is uploaded on this page)