BENEFITING: The Julian Boivin Courage for Cures Foundation
On the morning of Nov. 29, 2010, our world turned upside down when, seemingly overnight, our 4-year-old son Julian fell ill, and doctors discovered a mass at the base of his brain. It would later be diagnosed as a brain stem glioma or DIPG. Desperate, we searched the globe for the best available treatments for this inoperable, terminal disease that typically strikes children between the ages of 4-9 - only to find the same standards of the last 30 years and a heartbreaking prognosis of 0% survival.
These terms were simply unacceptable.
The courage we saw Julian muster in those seven months changed our lives. Since losing him in July 2011, we’ve been committed to carrying on the fight he started in an effort to see the day when parents no longer have to hear the words “no known cause or cure.”
Progress is slower than anyone would like, but hope is on the horizon. Due in large part to family foundations like ours in partnership with an army of others within The DIPG Collaborative and beyond, in just the last six years, the field of DIPG has exploded. Significant advances in funding and attention have allowed researchers to gain a firm understanding of DIPG’s biology, the genetic drivers of its mutations, and better-targeted drugs and methods of delivery to attack these tumors. All this while more doctors than ever are now dedicated to DIPG - many of whom believe that unlocking its mysteries could lead to the home run cure for all cancers.
The Julian Boivin Courage for Cures Foundation is a 501(c)(3) that exists to raise awareness and badly needed funds to arm kids with a fighting chance against the deadliest pediatric brain cancers. We seek out and support the most progressive partnerships and research dedicated to finding cures for devastating brain tumors like Julian’s.
To keep administrative fees to a minimum, Courage for Cures is completely volunteer-based so that your contribution supports those working to find breakthroughs in a field that falls short in attention and funding. Our hope is that we can play even a small role in putting an end to the most unacceptable words a family can receive: “no curable measures.”