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Mike Osegueda's Fundraiser:

CRANIO: A benefit for families facing skull surgery

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BENEFITING: CRANIO CARE BEARS

Mike Osegueda

THE STORY:

When our son was six months old, he had his head cut open from ear to ear. Surgeons then broke apart his skull and removed a piece of it. This, the doctors had told us, would allow room for his brain to grow, make sure he didn’t go blind one day and make it so his odd-shaped head would be “normal.”

Craniosynostosis was his diagnosis; it’s a relatively rare condition that affects about one in 2,500 babies. We’d never heard of it and, as you can imagine, we were terrified when our pediatrician told us. We spent an entire weekend literally floored, reading stories and looking at pictures on the Internet that brought us to tears. Then, we found a Facebook page called Cranio Care Bears. It was a resource for parents facing craniosynostosis and it was the first time we felt like this might be OK.

Our son Cole is doing great now. He had surgery last September, recovered on schedule, wore a helmet for six months and now, to the naked eye, looks like a normal toddler. He has a lightning bolt scar from ear to ear that you can see if you look close. With the one-year anniversary of his surgery almost upon us, we wanted to help the organization that helped us. Cranio Care Bears gave us hope. It made us feel like we weren’t all alone facing this horrible, mysterious thing that we’d never heard of. The people behind it — two cranio moms, one from Colorado and the other from Washington — share the stories of others going through the surgery. They send care packages to families in the hospital. They offer one-on-one counseling. We’ve never met them, but we’re beyond thankful for them.

So in the name of our son — and in the name of little kids who fight hard and other parents who need hope — we've organized a fundraiser Aug. 20 at Tioga-Sequoia Brewing Co. in Fresno, Calif. There will be live music, beer, food, and a raffle, all of which will help the cause. If you can't be there and would like to donate money online, you can do that here. We’re not keeping a penny of what's raised and will be chipping in a donation of our own. We’re just thankful our son is OK and we hope we can use this experience to help other families find their own peace of mind.

DONATE

To This Fundraiser

$960

MONEY RAISED
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  • Auntie K

    $50

  • Sunnyside Bicycles

    $50

  • Lisa Fialho

    $25

  • Anonymous

     

  • Marek W.

    $50

  • Alex & Caty Perez

    $100

  • Fresyes!

    $100

  • Anonymous

    $50

  • Terri

    $25

  • The Jon

    $35

  • The Powells

    $50

  • Amir & Rajan

    $100

  • Yvonne Vallejo

    $20

  • Anonymous

    $25

  • Anonymous

    $20

  • Natali Carrera

    $20

  • Ryan Thibodaux

    $10

  • Serafina Jaramillo

    $50

  • Angela Betonio

    $10

  • Christina Musson

    $25

  • Rich and Gail Marshall

    $20

  • Lisa Alvey

    $35

  • Anonymous

    $50

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96% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $960 TOTAL RAISED SO FAR

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Donor Comments

Anonymous

ANONYMOUS

DONATION: $50

God bless your family. Great to know that Cole is doing so well! Hugs to you for making it through this terrifying ordeal. Blessings and happiness in the days ahead! David & Lorrie Clark 2 years ago

Lisa Alvey

Lisa Alvey

DONATION: $35

2 years ago

Rich and Gail Marshall

Rich and Gail Marshall

DONATION: $20

Go, go, go Cole, baby! 2 years ago

Christina Musson

Christina Musson

DONATION: $25

Sorry I couldn't make the event last week but I hope you raised lots of money for this great cause! 2 years ago

Angela Betonio

Angela Betonio

DONATION: $10

Tanya was a good friend to me back in high school. Your story is very inspiring. 2 years ago

Serafina Jaramillo

Serafina Jaramillo

DONATION: $50

2 years ago

Ryan Thibodaux

Ryan Thibodaux

DONATION: $10

2 years ago

Natali Carrera

Natali Carrera

DONATION: $20

Love what you guys are doing and of course, your whole family! ♥️ 2 years ago

Anonymous

ANONYMOUS

DONATION: $20

In honor of Cole and the Osegueda family 3 years ago

Anonymous

ANONYMOUS

DONATION: $25

3 years ago