Hi! I am Natalie. I was diagnosed with Crohn's disease at age 20. My Crohn's was fairly mild with mostly minor ups and downs at first. I had a rough flare up in 2007 where I struggled to keep up as a toddler teacher. I made a career change to a pediatric office where i could still work with children but with less physical strain on my body, and a few less hours. At first leaving my field was heartbreaking, but I ended up liking my new job! Durning this time, i was managed with Asacol and Steroids.
When trying to have my second child, I decided to stay at home to try to keep my stress level down and just take care of my daughter and I. A few months after my son was born in 2013, my health took a turn for the worst. In November 2013 at 28 years old, I was in a downward spiral facing a surgery for an abcess near my ileum. I ate very little for months because i was on hospital bowel rest multiple times. After having two feel of bowel and an inflammed appendix removed, i had the long process of healing and taking care of a newborn all at once. I lost 6 clothing sizes. My husband and mother in law were amazing support during this time.
I agreed to a biologic medication in 2014, but had little sucess with the first one i tried. I had a fistula progress during this time. I begain Remicade infusions in the hosipital in March 2015. Now it's October 2015, I regained all of my weight and just found out this past week that i am in my first ever clinical remission!
Also thanks to my sister who is always my cheerleader and who helped make countless baked goods for a fundraiser for me during my surgery and homemade crafts for this MAP vaccine. Thanks to my Klinesgrove church family for prayers and financial support during my surgery, and my family for always having my back during this horrible disease.
Thanks for reading my story and supporting this cause. It's a good one!
Amy Hermon-Taylor wrote -
We are a group of Crohnies whose mission is to raise funds to enable the Crohn's MAP Vaccine developed by Prof. John Hermon-Taylor (King's College London) to commence human trials. This Vaccine is targeted against the bacteria thought to cause Crohn's disease: Mycobacterium avium subspecies paratuberculosis (MAP). The vaccine is designed to treat Crohn's disease and has the potential to be a Crohn's cure! The project currently on-going at King's College London will provide a new simple accurate test for MAP in humans for use in the vaccine trial.
We are very grateful to Friends of Kings College London Association Inc for supporting this project.
Crohn's Disease is an aggressive form of inflammatory bowel disease affecting 1.2 million people in the USA. Numbers are increasing, especially in children. Symptoms include chronic abdominal pain, bloody diarrhoea and weight loss. Up to 80% of sufferers will need surgery at some point in their lifetime. There is currently no cure.
We want to help change that. If you are a Crohnie who wants to make a difference then join us -YOUR VACCINE NEEDS YOU!
Visit crohnsmapvaccine.com for more info.