Skip to content
valeriejoly's profile image - click for profile

Valerie Joly's Fundraiser:

Crohn's MAP Vaccine Heroes

Valerie's Photo
Valerie Joly

THE STORY:

One year after beginning my marriage I thought my ulcerative colitis diagnosis would be tough, but manageable.  Along came our daughter in 2008.  She was perfect and I was tired.  Little did I know my new family and I were in for the ride of our lives.  They diagnosed me with Crohn's in 2012.  

After I stopped breastfeeding my child the Crohn's kicked in with a vengeance.   Bloody bowel movements, aches and pains coupled with extreme fatigue.   I went on the SCD diet and was almost normal with in 3 months. This hiatus abruptly ended when my gallbladder was removed.

Continuing to tweek my diet and exercise routine, I worked with GI's, homeopaths, chiropracters and massage therapists.  We watched in horror as my condition worsened.  Things that worked before proved fruitless.  Everyday it seemed harder to breath.  Finally we discovered severe anemia and periodic iron infusions were added to my regime after I was rushed to the hospital for a whole blood transfusion.  After that I added an oncologist to my team.

I have slowly worked myself up to a place where I no longer sleep most of the day and have the energy to take care of my family.  I live with a huge list of food allergies, impromptu stints of bloody diarriah and fatigue.  I work out and keep as active as I can.  I know when I give into the fatigue for too long, it is harder to get back into the mix.  Armed with an arsenal of ice packs, heating pads, teas and bath salts I get through my day. I refuse to give up my life and family for this disease.

I found that by eating a diet and taking homeopathic remedies that inhibit the growth of bacteria and candida I am better able to stay my course.  Removing my amalgam fillings has greatly decreased the bleeding, but not enough.  This is why I know in my heart of hearts that a pathogen is at the root of this disease.  

I am grateful that I am where I am in my fight and live everyday with the fear of creeping backward.  But that fear does not stop me.   I am well aware that there are people suffering much more than I do.   

We need to raise money for the Crohn's Map Vaccine so no one will suffer.  We need to do it to potentially help all autoimmune disease sufferers.  No one should have to suffer. 

DONATE

To This Fundraiser

$1,728

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Tucker, Whiskers and Eckee

    $125

  • The Hawkey Family

    $25

  • Beth Lawler

    $25

  • Team Bish

    $25

  • Susan G Gare

    $25

  • Ronald C. Ward

    $25

  • Mark, Nee and Mowgli

    $50

  • Jackett Family

    $50

  • Caileb, Jeff and Jackie Titus

    $25

  • The Heslop Family

    $50

  • Jim and Sue Alexander

    $25

  • Crohn's Warrior

    $303

  • Lisa and Gary Lonschein

    $25

  • Crohn's Warrior

    $345

  • Laura, Doug, Ethan and Brendan

    $25

  • Reva & Frank Giordonello

    $30

  • Jack Piel

    $120

  • Mark Sheehan

    $25

  • The Bimm Family

    $100

  • Scotty and Susie Bradshaw

    $100

  • Christoffer Holmsteen

    $25

  • Misti Walker

    $15

  • Jennie G

    $15

  • Jillian

    $20

  • Katherine Rodriguez

    $30

  • Lori Atkinson

    $15

  • For Val❤️

     

  • Rebecca J. Harris

    $15

  • Andrea mags

    $25

  • Hannah Mull

    $30

  •  
  •  
  •  
 

35% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $25,869 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Amy Hermon-Taylor

Amount Raised

$4,857

 

7% Raised of $65,000 Goal

Fundraiser Title

Rachel Diebner

Amount Raised

$3,886

 

97% Raised of $4,000 Goal

Fundraiser Title

Annabelle Hall

Amount Raised

$2,750

Fundraiser Title

Melinda Johnson

Amount Raised

$2,720

 

91% Raised of $3,000 Goal

Fundraiser Title

Annie Childs

Amount Raised

$2,475

 

50% Raised of $5,000 Goal

Fundraiser Title

Kimberly Davis Ward

Amount Raised

$2,264

 

45% Raised of $5,000 Goal

Fundraiser Title

Valerie Joly

Amount Raised

$1,728

 

35% Raised of $5,000 Goal

Fundraiser Title

Amber Martin

Amount Raised

$950

Donor Comments

Hannah Mull

Hannah Mull

DONATION: $30

2 months ago

Andrea mags

Andrea mags

DONATION: $25

Thanks for the hat 5 months ago

Rebecca J. Harris

Rebecca J. Harris

DONATION: $15

5 months ago

For Val❤️

For Val❤️

6 months ago

Lori Atkinson

Lori Atkinson

DONATION: $15

6 months ago

Katherine Rodriguez

Katherine Rodriguez

DONATION: $30

6 months ago

Jillian

Jillian

DONATION: $20

- thank you for the hat! 6 months ago

Jennie G

Jennie G

DONATION: $15

Thanks for the homemade hat :) 6 months ago

Misti Walker

Misti Walker

DONATION: $15

7 months ago

Christoffer Holmsteen

Christoffer Holmsteen

DONATION: $25

1 year ago