Cru's Crew to Recovery
Organized by: Grace Javier
Meet the adorable Cru! He was born March 22, 2014 to loving parents Richelle and Anthony Tinnarello. Although Richelle had a healthy pregnancy with no complications, Cru had undergone fetal distress during labor. An emergency C-section had to be performed. Unfortunately, Cru suffered Hypoxic Ischemic Encephalopathy (HIE), a lack of oxygen to the brain, and seizures. MRI results revealed significant global injury to his brain with an inevitable diagnosis of cerebral palsy.
At four months Cru was diagnosed with Infantile Spasms, a rare and catastrophic form of epilepsy. Cru began to lose his ability to suck on a pacifier, track objects, and lift his head. He began regressing to a newborn state as the spams continued. After a month of testing, doctors were finally able to find a medication that could control his chaotic brain activity and spasms. Currently Cru is seven weeks seizure free, however Cru is developmentally delayed in all areas.
Today Cru is being fed and given medication through a tube. Surgery for a gastrostomy tube has been delayed due to reactions to high dose steroids. Instead of being able to visit friends and family, Cru receives weekly in home visits from physical therapists, occupational therapists, intervention specialists, and feeding specialists. Leaving his home is minimized.
When Cru was diagnosed with Infantile Spasms, Richelle immediately quit her job to be by her son’s side, but this also meant being dependent on one income. Opportunities are limited and expenses are limitless, insurance covers only so much.
Because Cru is so young he has the opportunity to take advantage of the brain’s plasticity with various therapies to help him grow a normal life:
1) ABM Therapy - a neuro-movement therapy which focuses on the child's brain to create new connections for breakthroughs in movement, thinking, self-regulation, and connection with others
2) Conductive Education - a system of integrated cognitive, physical, social, emotional, volitional, and ethical education for children with motor disorders of neurological origin
The problem…the therapies are not covered by their insurance company. One income, high expenses, and opportunities are out of reach. So how can YOU help?!
The purpose of this campaign is to raise enough funds to help Richelle and Anthony give their little Cru an opportunity to attend these therapies and give Cru the chance to grow up a normal child. Please join Cru’s Crew to Recovery by helping this adorable baby boy in any capacity that you can! Any monetary amount will go a long way, even reposting and sharing to your family and friends.
Their journey has just begun. Every day is a battle. Every day they pray for no seizures. Every day they pray for Cru to reach his “inchstones”. But every day they continue to cherish their little miracle. Let’s help provide Cru and family with a little miracle. Thank you.