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Cru's Crew to Recovery

Organized by: Grace Javier

Grace's Photo

THE STORY:

Meet the adorable Cru! He was born March 22, 2014 to loving parents Richelle and Anthony Tinnarello. Although Richelle had a healthy pregnancy with no complications, Cru had undergone fetal distress during labor. An emergency C-section had to be performed. Unfortunately, Cru suffered Hypoxic Ischemic Encephalopathy (HIE), a lack of oxygen to the brain, and seizures. MRI results revealed significant global injury to his brain with an inevitable diagnosis of cerebral palsy.

At four months Cru was diagnosed with Infantile Spasms, a rare and catastrophic form of epilepsy. Cru began to lose his ability to suck on a pacifier, track objects, and lift his head. He began regressing to a newborn state as the spams continued. After a month of testing, doctors were finally able to find a medication that could control his chaotic brain activity and spasms. Currently Cru is seven weeks seizure free, however Cru is developmentally delayed in all areas.

Today Cru is being fed and given medication through a tube. Surgery for a gastrostomy tube has been delayed due to reactions to high dose steroids. Instead of being able to visit friends and family, Cru receives weekly in home visits from physical therapists, occupational therapists, intervention specialists, and feeding specialists. Leaving his home is minimized.

When Cru was diagnosed with Infantile Spasms, Richelle immediately quit her job to be by her son’s side, but this also meant being dependent on one income. Opportunities are limited and expenses are limitless, insurance covers only so much.

Because Cru is so young he has the opportunity to take advantage of the brain’s plasticity with various therapies to help him grow a normal life:

1) ABM Therapy - a neuro-movement therapy which focuses on the child's brain to create new connections for breakthroughs in movement, thinking, self-regulation, and connection with others

2) Conductive Education - a system of integrated cognitive, physical, social, emotional, volitional, and ethical education for children with motor disorders of neurological origin
The problem…the therapies are not covered by their insurance company. One income, high expenses, and opportunities are out of reach. So how can YOU help?!

The purpose of this campaign is to raise enough funds to help Richelle and Anthony give their little Cru an opportunity to attend these therapies and give Cru the chance to grow up a normal child. Please join Cru’s Crew to Recovery by helping this adorable baby boy in any capacity that you can! Any monetary amount will go a long way, even reposting and sharing to your family and friends.


Their journey has just begun. Every day is a battle. Every day they pray for no seizures. Every day they pray for Cru to reach his “inchstones”. But every day they continue to cherish their little miracle. Let’s help provide Cru and family with a little miracle. Thank you.

$8,048

 

107% Raised of $7,500 Goal

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  • Grace Javier

    $50

  • Valerie and Marvin Llavore

    $100

  • Anonymous

     

  • Melendez

     

  • Kelsey Wrigley

     

  • Fred and Rose

    $100

  • Imee Zarate & Fam

    $50

  • Charize Manuel

    $25

  • Lizette and Rodney

     

  • Anonymous

     

  • AJ

     

  • Theresa and Ray

    $100

  • Srividya Sabhanayakam

    $100

  • Tony Pizano

    $50

  • mikee bibat

    $50

  • Tawni Lopez

    $40

  • Shimmy

    $105

  • Swong Family

    $100

  • Edzel, Mae, Jenna and Tai

    $100

  • Josh, Chrisel, Jet and Sol

    $1,000

  • Ingrid Marayag and family

     

  • Angelica & Bryon Bean

    $100

  • joseph & rene preciado

    $100

  • Dyna Kam

    $100

  • Silvano n Esther

    $400

  • Anonymous

     

  • Ben and Diann Tenty

    $200

  • Mel, Ireen & Wijangco family

    $200

  • Fred, Liani and Ethan Viernes

    $100

  • Chris, Jenn, Christian, Seth

    $50

  • Blair & Aileen Douglas

    $50

  • Ashley Cao

     

  • Kevin and Erica Johnson

    $100

  • Jeremy & April

     

  • Anonymous

    $20

  • Arturo Corral

    $20

  • Jim and Judy Erickson

    $100

  • Tom Gott

    $100

  • Ruth Vranas

    $100

  • The Lavalley Family

    $50

  • Southward

    $100

  • Marijane Davis

    $100

  • Stella Guevara

    $50

  • Jojo and Lorna

    $100

  • Anonymous

     

  • Kim Ta

    $100

  • Sa & J

    $25

  • Alan Cabaccang

     

  • Jeff

    $40

  • Jennifer Domondon

     

  • JIRMY,CARRIE,MARC,MATTHEW&MEGAN;

    $100

  • tiffany nguyen

    $60

  • Vanessa & Sam

    $243

  • Audrey, Mark & Maisyn Belle Saldana

    $100

  • Farrales Family

    $200

  • Janelle & Scott Espling

    $100

  • Arnel&Amy;

    $100

  • Lara Cabana

    $50

  • Eileen Hotchkiss

    $50

  • Jewelyn, Noel & Devin

    $100

  • The Milan Family

    $100

  • Earl, Rea, Janessa, Joshua, & Abby

    $50

  • Sherwin and Alaine Flores

    $20

  • Eleanor Santos

    $100

  • Love you Cru!

     

  • Elizabeth Ho

    $25

  • Adrianne Maracha Tesoro

    $50

  • Gerard and DiAnne Lozano

     

  • Barksdale Fam

    $50

  • CrowdRise Donation

    $25

  • Jaimee & Nathan

     

  • Anonymous

    $20

  • Judy & Justin

    $50

  • Beth Dungca

    $50

  • Emma&Andrew; Lumidao

    $20

  • Trinh Nguyen

    $30

  • Zach Morris

     

  • Chau Pham

    $50

  • Anonymous

    $50

  • Helen, Alyssa & Makaila

    $25

  • Sylvia Pham

    $50

  • Lulu Family

    $25

  • Anonymous

    $140

  • Geramie Viray & family

    $30

  • Juanita, Carlo and Baby John

    $25

  • Zarzycki Family

    $20

  • clara and Ned Gehringer

    $100

  • Ron and Gloria Tinnarello

    $200

  • Tessa

    $50

  • Jonathan Patalot & Rosie Nguyen

    $100

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Organized by

Grace Javier

This is a direct to organizer fundraiser.

Donor Comments

Jonathan Patalot & Rosie Nguyen

Jonathan Patalot & Rosie Nguyen

DONATION: $100

3 years ago

Tessa

Tessa

DONATION: $50

Thoughts and continued prayers for Baby Cru! 3 years ago

Ron and Gloria Tinnarello

Ron and Gloria Tinnarello

DONATION: $200

God's healing hand is upon you. 3 years ago

clara and Ned Gehringer

clara and Ned Gehringer

DONATION: $100

Cru will be in our prayers. 3 years ago

Zarzycki Family

Zarzycki Family

DONATION: $20

3 years ago

Juanita, Carlo and Baby John

Juanita, Carlo and Baby John

DONATION: $25

Sending lots of love. We are so glad Cru has parents like you! 3 years ago

Geramie Viray & family

Geramie Viray & family

DONATION: $30

Sending positive vibes and prayers your way Cru! 3 years ago

Anonymous

ANONYMOUS

DONATION: $140

Sending our love & well wishes to you guys. Praying that baby Cru progresses in a positive & thriving path. You are both amazing parents! Stay strong & God Bless! 3 years ago

Lulu Family

Lulu Family

DONATION: $25

3 years ago

Sylvia Pham

Sylvia Pham

DONATION: $50

3 years ago

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