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Marissa Mikos' Fundraiser:

Team Zayden!

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12 days everyone!!!
April 25, 2017

 12 days left till the BIG walk!!! I'm excited to announce this !!! We've been waiting  too long! <3  KEEP CALM & CURE !!  See more

BENEFITING: Cure JM Foundation

EVENT: Walk Strong to Cure JM - Chicago

EVENT DATE: May 07, 2017

Marissa Mikos

THE STORY:

Zayden is a 5 years old with juvenile dermatomyositis. It took a whole year to get the diagnosis (March 1st, 2015) Zayden could barely walk, he couldn't get out of bed alone. He couldn't get in and out of the car. Stairs were impossible for him. He couldn't hold his head up after awhile. He started losing hair. Choking on food due to muscle weakness in his neck, trunk, legs and arms. He couldn't lift his arms above his head and we carried him everywhere for 6 months. He lost tremendous weight. Going to 2 emergency rooms with concerns and being referred to a neurologist that's wasn't sure there was anything wrong with him because he said he may just be acting out (x-ray, MRI, spinal tap & blood had been done) .... Then being referred to another neurologist at Loyola. He did genetic testing. EKG then referred us to a physical therapist at MarianJoy rehabilitation hospital. Met her for about 5 minutes and bam Zayden was diagnosed. I asked her to write it on a piece of paper because I couldn't even pronounce it for a couple months. Immediately from there we were sent back to Loyola for a muscle biopsy for confirmation of the diagnosis. It did confirm dermatomyositis. They wanted a skin biopsy but we opted out of that since they were similar tests. Zaydens CK was 1427. So weak and so much pain at 3 years old. We were stuck at Loyola for 2weeks so many steroids to control this disease. Methotrexate & folic acid, vitamin d, plus 3 blood pressure medications ivig infusions. Then after they seen improvement and had his blood pressure under control we went back to MarianJoy for physical, occupational, & speech therapy. We were there for another 2 weeks. Zayden was bilateral casted because he couldn't stop walking on his tip toes. He had bad range of motion in his ankles then when we took the cast's off he would walk with his feet outward like a duck. Then we got Afo leg braces! They did him good ! But when we were sent home we still had casting for couple more weeks to flatten his feet and stretch his muscles. Then we got home it was a relief to be home! Hospital beds and chairs weren't comfortable at all. Zayden had therapy 3x a week after being discharged. Then it went to 2x a week's finally this past August 2016 we were discharged completely. Zayden now is doing amazing he still fights high blood pressure and gets his monthly infusion. But the support we receive from the Cure JM community is amazing and we can't wait for our walk! Hope my family and friends can make it! Love always, Zayden & family!

DONATE

To This Fundraiser

$2,065

MONEY RAISED
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  • Jose

    $50

  • Sherrill S Cannon

    $10

  • Sherrill S Cannon

    $10

  • Grandma and Grandpa

    $50

  • Ramon Macias

     

  • Sherrill S Cannon

    $25

  • Grandpa Wayne

    $250

  • Car1 Tire & Auto

    $100

  • Gaby Ynocencio

    $10

  • Zaydens mommy

    $10

  • Sherrill Cannon

    $10

  • Heather

    $10

  • Laticia

    $10

  • Breigha

    $10

  • Geri Schock

    $20

  • Bob & Annette Swoger

    $25

  • Jenny Olson

    $25

  • Shamika Samiya and Family

    $20

  • Mrs. Sword

    $20

  • Mom

    $85

  • Patricia

    $25

  • Marianne Santos

    $25

  • Tiffani and Deborah Ynocencio

    $15

  • Grandma Cherise

    $15

  • Bre Bruce & Raymond

    $50

  • Freddy aka Nuno

    $10

  • Tia yoya & Uncle Bob

    $50

  • Rocky & Mari

    $50

  • Jamica

     

  • NENA TORRES

    $50

  • Sue McQ

    $10

  • John Muir

    $985

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207% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $2,065 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Marissa Mikos

Amount Raised

$1,995

 

200% Raised of $1,000 Goal

Fundraiser Title

Nena Torres

Amount Raised

$50

Fundraiser Title

Jose Torres

Amount Raised

$20

Fundraiser Title

Kayla Bartley

Amount Raised

$0

Fundraiser Title

Kate Canty

Amount Raised

$0

Donor Comments

John Muir

John Muir

DONATION: $985

9 months ago

Sue McQ

Sue McQ

DONATION: $10

9 months ago

NENA TORRES

NENA TORRES

DONATION: $50

I love my babyð 9 months ago

Jamica

Jamica

9 months ago

Rocky & Mari

Rocky & Mari

DONATION: $50

9 months ago

Tia yoya & Uncle Bob

Tia yoya & Uncle Bob

DONATION: $50

9 months ago

Freddy aka Nuno

Freddy aka Nuno

DONATION: $10

9 months ago

Bre Bruce & Raymond

Bre Bruce & Raymond

DONATION: $50

9 months ago

Grandma Cherise

Grandma Cherise

DONATION: $15

For my Zayden love you 9 months ago

Tiffani and Deborah Ynocencio

Tiffani and Deborah Ynocencio

DONATION: $15

Love you Zayden 10 months ago