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Ryan and Jenny Bragg's Fundraiser:

A Cure for Clara

Ryan and Jenny's Photo
Ryan and Jenny's Photo
Ryan and Jenny's Photo
Ryan and Jenny's Photo

BENEFITING: Cure GM1 Foundation

Ryan and Jenny Bragg

THE STORY:

We are terrified about what the future holds for our beloved daughter, Clara.  Clara is 3 1/2 years old and is such a bright and energetic spirit, constantly trying to keep up with her older brother whom she adores.  She is such a bright light in our lives, and her feisty yet friendly demeanor wins over everyone she encounters.


At 1 year old Clara began to plateau developmentally, causing us great concern.  She has always struggled with being stable enough to walk independently and lost the few words she ever spoke.  After chasing a diagnosis for an entire year,  we finally received heartbreaking news no parent could ever prepare to hear.


In August 2016, we were told that Clara has a terminal neurological condition called Late Infantile GM1 Gangliosidosis.  This disease will slowly take her abilities away and cause seizures, blindness, deafness, and the inability to eat and move.  We are devastated over the grim diagnosis for our beautiful girl.  Without treatment our worst fears will be realized as we will slowly watch our daughter fade away, ultimately ending her precious life far too early.


There is no treatment or cure yet, but there are several potential therapies being researched right now that are showing very positive signs in the lab and may be brought to a clinical trial soon.  The Cure GM1 Foundation was created for the sole purpose of funding this type of research and helping make a treatment and cure a reality one day so that other families don't have to endure what we are going through.  Our family is raising money for the Cure GM1 Foundation and are asking you to consider donating whatever your heart and means may allow to help us support ending this terrible disease forever.  All donations go straight to the foundation and are 100% tax deductible.


With heartfelt thanks,

Jenny & Ryan

 

GM1 References:

National Institute of Health:  https://ghr.nlm.nih.gov/condition/gm1-gangliosidosis

NIH/HHS:  https://rarediseases.info.nih.gov/diseases/10126/gm1-gangliosidosis-type-2/cases/23037

Cure GM1 Foundation:  https://curegm1foundation.org/

DONATE

To This Fundraiser

$473,332

MONEY RAISED
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  • Chad & Rashel Post

    $400

  • BFA Investments, LLC

    $500

  • Landon & Lindsey McLain

    $100

  • Michelle Lopez

    $10

  • Katie & Jason Yates

    $250

  • Noble Family Trust

    $240

  • David & Lisa Whitson

    $25

  • Gia Brothers

    $20

  • Agnes Conley

    $50

  • John & Lori Macomber

    $20

  • Carrie & Travis Coon

    $60

  • Jessica Davis

    $20

  • Clay & Andrea Stoker

    $20

  • Jonathan & Ginger Woodham

    $20

  • Thor & Alicia Manskow

    $20

  • Patrick & Jennifer McIntyre

    $20

  • Christopher & Kelly Ward

    $20

  • Chad & Rebecca Ford

    $20

  • Wesley & Merrick Wilson

    $20

  • Frank & Joanna Holmes

    $20

  • James & Lindsay Thompson

    $20

  • Ryan & Adrian Bevis

    $20

  • Raymond & Amber Wagner

    $40

  • Kristie & Dustin Niemoeller

    $20

  • Paul & Marti Carter

    $35

  • Beth Anne & Thomas Martin

    $25

  • Jeffrey & Beth Paczak

    $65

  • Joy Johnston

    $25

  • Chris & Barbara Blackberry

    $45

  • Rhett & Carol Plugge

    $100

  • Zach & Catherine Kesterson

    $20

  • Charles & Ann Martin

    $45

  • Kristin Layne

    $45

  • Matthew & Elizabeth Mitchell

    $60

  • Jeannie & Brian McClendon

    $20

  • Angela & William Lindsey

    $45

  • Ronald & Nancy Forrester

    $20

  • Robyn Roby

    $50

  • Robert & Jennifer Ross

    $20

  • Tom & Sarita Akin

    $500

  • Sandra Schifano

    $45

  • Terry & Jane King

    $20

  • Brian & Holli Frey

    $250

  • Vicky Henderson & Ivy Schuster

    $2,000

  • Wimberley Ace Hardware

    $301

  • Alan & Cathy Goldapp

    $100

  • Melinda Habingreither

    $114

  • Dr. Angela Clark

    $25

  • Maggie Ellis & Patrick Devereaux

    $40

  • Andrew & Elizabeth Rice

    $20

  • Sandra Potts

    $30

  • Ryan & Jenny Bragg

    $400

  • Jeremy & Bridget Roop

    $40

  • Angela Karen Photography

    $70

  • Mike & Kimberley Cobb

    $50

  • Sal & Maria Mendolia

    $100

  • Joseph Russo

    $500

  • The Roland Foundation

    $5,000

  • Geri Piparo & Jessica McCabe

    $100

  • Lois & Danny Hickman

    $50

  • Melinda Habingreither

    $502

  • Fran and Bob Walker

    $50

  • Anonymous

    $25

  • Melinda Habingreither

     

  • Megan Mittag Stewart

    $20

  • Peggy and Steve Giuntini

    $1,000

  • Porsche Wilson

    $40

  • Ted & Deborah Torres

    $50

  • Justin, Becca and Conner Dickey

    $25

  • Anonymous

    $250

  • Catalina Knutson

    $100

  • Dianne Hammelman

    $25

  • Anonymous

     

  • Kelsey F.

    $20

  • John C Bragg

    $250

  • Kenneth Bragg

    $100

  • Barbara Birgel

    $50

  • KORENA GARCIA

    $100

  • The Homan Family

    $25

  • Shawn Alexander

    $100

  • Julie Pendleton

    $40

  • Amy Bertagnolli Davis

    $50

  • Dina D. Rodriquez & Michael S. Murphy

    $50

  • Anonymous

    $25

  • Students and Staff of Stephen J. Gerace Elementary School

    $872

  • Veronica A. Garcia

    $60

  • Anonymous

    $80

  • Brandon Doerr

    $500

  • Sue and Rich Franco

    $100

  • Your friends David & Joy, Reese, and Tavi

    $500

  • Fluid Solutions LLC

    $500

  • Ted & Debby Torres

    $50

  • Laura Bragg Woolsey

     

  • Bracco Samantha

    $50

  • Steven Franco

    $50

  • Lars Wollin

    $100

  • Dewald Family

     

  • Geoff & Bethany Newman

     

  • Alli and Dustin Gomes

    $300

  • St. Anthony Class of 1964, San Antonio, TX

    $160

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95% Raised of $500,000 Goal

Fundraise for this Campaign

The Team: $473,332 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Ryan and Jenny Bragg

Amount Raised

$468,402

 

94% Raised of $500,000 Goal

Fundraiser Title

Douglas Beckett

Amount Raised

$4,230

 

846% Raised of $500 Goal

Fundraiser Title

Gretchen Decker

Amount Raised

$250

Fundraiser Title

Sharon Moore

Amount Raised

$250

Fundraiser Title

Michael Crowley

Amount Raised

$150

Fundraiser Title

Daniel Cohen

Amount Raised

$50

Donor Comments

St. Anthony Class of 1964, San Antonio, TX

St. Anthony Class of 1964, San Antonio, TX

DONATION: $160

(Rita Bragg's grade school classmates) 4 weeks ago

Alli and Dustin Gomes

Alli and Dustin Gomes

DONATION: $300

For our wedding in lieu of favors we are making a donation to GM1 made in honor of Clara Bragg 4 weeks ago

Geoff & Bethany Newman

Geoff & Bethany Newman

For sweet Clara, from friends of Melinda. 3 months ago

Dewald Family

Dewald Family

4 months ago

Lars Wollin

Lars Wollin

DONATION: $100

5 months ago

Steven Franco

Steven Franco

DONATION: $50

A Cure for Clara 5 months ago

Bracco Samantha

Bracco Samantha

DONATION: $50

6 months ago

Laura Bragg Woolsey

Laura Bragg Woolsey

In memory of Elizabeth Tess Woolsey 6 months ago

Ted & Debby Torres

Ted & Debby Torres

DONATION: $50

In Memory of Ashley Rose Parry 6 months ago

Fluid Solutions LLC

Fluid Solutions LLC

DONATION: $500

We care for Clara. Sending our love from Fluid Solutions LLC. 7 months ago