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Dan Fraley's Fundraiser:

Cure Sanfilippo Foundation

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BENEFITING: CURE SANFILIPPO FOUNDATION

ORGANIZER: Team RenRe and

EVENT: Tough Mudder Long Island 2017

EVENT DATE: Jul 22, 2017

Dan Fraley

THE STORY:

Team RenRe and CureSFF wrote -

IMAGINE ALZHEIMER’S, BUT IN CHILDREN.

In a nutshell, that’s what every Sanfilippo child is living with. Children with Sanfilippo are born with a genetic defect passed on from each unknowing parent.  This results in their body being unable to break down and recycle natural cellular waste due to a missing enzyme. Because the waste isn’t broken down, toxic material builds up in their brains first, and then their bodies. These kids start their lives normal, but then within a few years, it all begins to be taken away.  It is a rapidly degenerative disease.

Children with Sanfilippo usually pass away in their teens, yet it is preceded by many years of severe disability.  It's an unfair sentence on any child, and devastating to the helpless parents who can only watch as this happens to their little loved one. 

Currently there is no approved cure or treatment, but there is HOPE in promising research and paths to clinical trials.  This is where Cure Sanfilippo Foundation focuses its efforts to fund research to give these Sanfilippo children a chance at LIFE.  Shouldn't all children have a chance? THANK YOU for sponsoring and supporting this urgent cause. 

For more information on the 501c3 nonprofit, Cure Sanfilippo Foundation, visit www.CureSFF.org

DONATE

To This Fundraiser

$25

MONEY RAISED
  • Jill Padilla

    $25

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Fundraise for this Campaign

The Team: $25,429 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Team RenRe and CureSFF

Amount Raised

$25,404

 

127% Raised of $20,000 Goal

Donor Comments

Jill Padilla

Jill Padilla

DONATION: $25

5 months ago