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Jennifer Kapes' Fundraiser:

Cure Sanfilippo Syndrome

Jennifer's Photo
Jennifer's Photo
Jennifer's Photo
Jennifer's Photo
Jennifer Kapes

THE STORY:

Both of my sons' Ryan and Brayden suffer from Sanfilippo Syndrome.  There is currently no treatment or cure.

What is Sanfilippo Syndrome??

Sanfilippo syndrome is a genetic error of metabolism. It is a mucopolysaccharidoses, an MPS disorder, MPSlll. Mucopolysaccharides are long chains of sugar molecules, which are used in building connective tissues. When the body is finished using these molecules, it breaks them down, with enzymes, and disposes of them. Children with Sanfilippo syndrome are missing or are deficient in the enzyme to break down the molecules. Instead, the body stores these molecules in the cells.This storage causes progressive damage.

Sanfilippo syndrome is a progressive disorder, meaning that at birth the children appear typical and do not show signs of the disorder. As the disease progresses the children degenerate, losing the ability to speak, walk, eat and eventually lose their lives.

Team Sanfilippo Foundation is a non profit medical research foundation founded in 2008 by parents of children with Sanfilippo Syndrome. Our mission is to fund potential therapies that can be in clinical trials in the near future. We support Biotech, pharmecutical and research centers with potential therapies that are underfunded and provide assistance with connecting families to companies that need information for ongoing clinical work.

To learn more visit www.teamsanfilippo.org

REGISTER

$3,070

MONEY RAISED
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  • Amy and Matt Brown

    $50

  • Kris and Jeff Viar

    $100

  • Amy Cabrera

    $50

  • Sean and Chrissie Motoyoshi

    $100

  • Todd & Janelle Montigney

    $100

  • Ron Morgan

    $100

  • Bob Lawton

    $100

  • Tom & Barbara Palmer

     

  • Carol nacchio

    $10

  • Chip Nippert

    $25

  • Karen and Frank Lindell

     

  • Chuck and Lois

     

  • Harry & Sue Glembocki

    $50

  • The McPheeters

     

  • The Motoyoshi family

    $50

  • Harry & Judy Griffith

    $100

  • Heather Cosme Campbell

    $25

  • Anonymous

    $10

  • Mrs. D

    $25

  • Bob and Helene

    $50

  • Vito Conigliaro

    $25

  • Mary Pat Fitzpatrick

    $50

  • Virginia Mas

    $25

  • LLL

    $10

  • Jennifer Connolly

    $25

  • Shanda Neutz

    $25

  • Sandi Neutz

     

  • Alison Glembocki

    $50

  • Carey Cross

     

  • Honald

    $50

  • Kelly Bender

    $50

  • Garner family

    $50

  • Stacey Silvers

    $25

  • Security, Inc.

    $50

  • Aunt Deb

    $50

  • Sklodowski family

    $20

  • David & Alison Harrison

    $100

  • Meghan and Heather

    $15

  • Karen Katsoff

     

  • Melanie, Mia and Brennan Aube

    $25

  • Kelly smith

    $25

  • Jeff Whitmarsh

     

  • Silver fox

    $25

  • 893

    $50

  • The Clines

     

  • Anonymous

    $50

  • Lauren and Scott

    $25

  • Meehan family

    $25

  • Stacy Dawson

    $25

  • Jenni Lynch

    $100

  • Megan O'Hara

    $25

  • Madeleine weaver

    $40

  • Innovincent - Race to First 5K Women's Team Division First Place Prize

    $100

  • Innovincent - Race to Raise 3rd Place Prize

    $100

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61% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $3,070 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jennifer Kapes

Amount Raised

$1,985

 

40% Raised of $5,000 Goal

Fundraiser Title

Chris Sutton

Amount Raised

$575

Fundraiser Title

Villaverde Family

Amount Raised

$240

Fundraiser Title

Kimberly Harrison

Amount Raised

$170

Fundraiser Title

Morgan Brandenberger

Amount Raised

$100

Fundraiser Title

Jill Demmy

Amount Raised

$0

Donor Comments

Innovincent - Race to Raise 3rd Place Prize

Innovincent - Race to Raise 3rd Place Prize

DONATION: $100

2 years ago

Madeleine weaver

Madeleine weaver

DONATION: $40

2 years ago

Megan O'Hara

Megan O'Hara

DONATION: $25

2 years ago

Jenni Lynch

Jenni Lynch

DONATION: $100

2 years ago

Stacy Dawson

Stacy Dawson

DONATION: $25

2 years ago

Meehan family

Meehan family

DONATION: $25

2 years ago

Lauren and Scott

Lauren and Scott

DONATION: $25

2 years ago

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

The Clines

The Clines

2 years ago