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Charlotte and Gwenyth Gray Foundation

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Charlotte and Gwenyth Gray Foundation
Corona del Mar, CA
CROWDRISING SINCE: Nov 11, 2015
Stuff About Me:

THE CHARLOTTE AND GWENYTH GRAY FOUNDATION TO CURE BATTEN DISEASE WAS FOUNDED TO RAISE THE ESTIMATED 10 MILLION DOLLARS NECESSARY TO FUND THE URGENT MEDICAL RESEARCH TO SAVE THE LIVES OF ALL CHILDREN DEVASTATED BY THIS DISEASE.

Just a few years after welcoming their two daughters into the world, Gordon and Kristen Gray are faced with the agonizing prospect that neither will live to become a teenager.  Charlotte Gray was born just a few weeks before Christmas 2010 and developed at the pace of a typical baby and toddler – walking and talking, with an early passion for gymnastics, dancing and swimming. After Charlotte’s first full year of preschool, her parents noticed that she seemed to hit a plateau developmentally. In March 2015, after a steady stream of questions and tests, Charlotte was diagnosed with Batten disease (Late Infantile NCL Batten Disease CLN6). A geneticist explained that this rare neurodegenerative disorder would leave Charlotte blind, immobile and cognitively impaired, and ultimately, gone between the ages of 6 and 12. The Grays immediately had their younger daughter Gwenyth evaluated and genetic tests revealed the same devastating diagnosis. Due to its rarity, solutions for this presently incurable and fatal disease have received minimal research, focus and funding.   Kristen and Gordon’s worlds were shattered, but they were unwilling to accept “there is no cure” for an answer and created The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease to raise the money necessary to fund accelerated medical research to identify the most effective treatment options and find a cure.

THE PROGRESS: Since launching in June 2015, the foundation has raised almost $3 million and has initiated funding into promising gene therapy and small molecule therapy treatments. As with any medical research, progress comes with a price tag and an additional $2 million is needed urgently to maintain the pace necessary to reach the ultimate goal of a full clinical program to save the lives of Charlotte, Gwenyth and all other children battling the disease.

WEBSITE: For more information on the foundation, please visit www.curebatten.org.

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Charlotte and Gwenyth Gray Foundation's Fundraisers

Smith Family Supporting CureBatten

Smith Family Supporting Cure…

Amount Raised:

$766,221

Gray Girls

Gray Girls

Amount Raised:

$105,934

Holiday Challenge - Charlotte and Gwenyth Gray Foundation

Holiday Challenge - Charlott…

Amount Raised:

$94,183

Gray Girls Annual Giving

Gray Girls Annual Giving

Amount Raised:

$0

Scooter for Batten

Scooter for Batten

Amount Raised:

$10,475