Skip to content
CiaraRose's profile image - click for profile

Kathleen Van De Loo's Fundraiser:

Cure SMA and My Daughter, Ciara

Kathleen's Photo
Kathleen Van De Loo

THE STORY:

At 2 weeks old, our daughter Ciara Rose was diagnosed as having Spinal Muscular Atrophy (SMA). I know - you've never heard of it. Neither had I, until, at 5 months pregnant, I was found to be a carrier of the gene for it. In fact, 1 in 40 people are carriers and, most likely, they do not even know it. To put it simply, SMA is the most devastating disease you could imagine. Individuals affected by it lack the protein (or enough of it) that is required for the most important muscles of the body, such as those for walking, talking, eating and (yes, its true) breathing. Until a cure is found, my daughter will never walk and may lose her ability to eat and breathe. That's why I run - so that one day she may too.

Since most people are unaware of this disease, the research behind it is severely underfunded. That's where the families have stepped in. We have to raise the money to save our children. Help me save mine.

The Team: $0 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Be the first to Donate to Kathleen and Cure SMA and My Daughter, Ciara.