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Kathleen Van De Loo's Fundraiser:

Cure SMA and My Daughter, Ciara

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Kathleen Van De Loo


At 2 weeks old, our daughter Ciara Rose was diagnosed as having Spinal Muscular Atrophy (SMA). I know - you've never heard of it. Neither had I, until, at 5 months pregnant, I was found to be a carrier of the gene for it. In fact, 1 in 40 people are carriers and, most likely, they do not even know it. To put it simply, SMA is the most devastating disease you could imagine. Individuals affected by it lack the protein (or enough of it) that is required for the most important muscles of the body, such as those for walking, talking, eating and (yes, its true) breathing. Until a cure is found, my daughter will never walk and may lose her ability to eat and breathe. That's why I run - so that one day she may too.

Since most people are unaware of this disease, the research behind it is severely underfunded. That's where the families have stepped in. We have to raise the money to save our children. Help me save mine.



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