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Carley Jurishica's Fundraiser:

Team O to Cure CMD - Kansas City Marathon

Carley's Photo

BENEFITING: CURE CMD

ORGANIZER: Matt

EVENT DATE: Oct 19, 2013

Carley Jurishica

THE STORY:

Matt Bloomfield wrote -

As many of you may know, our daughter Olivia was diagnosed with a rare form of congenital muscular dystrophy called MDC1A, or merosin-deficient CMD. There is currently no cure or treatment for this disease. Most of the children with this condition will never walk and are faced with tremendous health challenges, as even a simple cough or runny nose can turn into a serious lung infection requiring hospitalization.

While Olivia and other children with this disease battle each day to lift their heads, bear weight on their arms and legs or attempt to navigate their lives from the confines of a wheelchair, there is significant hope in the medical community that treatments are within reach. Sara and I have been working with a not-for-profit called CureCMD and a biotechnology company focused on a treatment for MDC1A to help fund and advance the initiatives for the treatments of Olivia’s condition. However, the prevalence of this disease is quite small, and the major pharmaceutical companies have been much more focused on drugs and treatments that will produce higher profits than a rare disease such as MDC1A.

This is where all of us have the ability to help Olivia and other children with muscle disease. As part of the Kansas City Marathon on October 19, 2013, we are creating a team to run in the race and to raise money for CureCMD and the research they sponsor. The proceeds raised for CureCMD go to funding research for congenital muscular dystrophy. The race is comprised of a 5k, a half-marathon and a full marathon, which means anyone can realistically participate if they would like! For those not able to run or walk, volunteers would always be welcome to help encourage runners and support their efforts. And for those not able to make it to Kansas City, any runner would welcome a donation.

DONATE

To This Fundraiser

$675

MONEY RAISED
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  • Carley Jurishica

    $100

  • Zach Kauble

    $50

  • Gwynne Weber

    $25

  • Augie and Bobbie Jurishica

    $100

  • Anonymous

    $200

  • Scott and Laurel Tippett

    $50

  • Carley Kauble

    $150

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Fundraise for this Campaign

The Team: $117,702 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sid and Susy Reitz

Amount Raised

$46,105

Fundraiser Title

Ryan Sciara

Amount Raised

$10,395

 

104% Raised of $10,000 Goal

Fundraiser Title

The Bloomfields

Amount Raised

$8,100

 

162% Raised of $5,000 Goal

Fundraiser Title

Ashley Webb

Amount Raised

$7,655

Fundraiser Title

Matt Bloomfield

Amount Raised

$6,955

 

14% Raised of $50,000 Goal

Fundraiser Title

Candy Siko

Amount Raised

$4,340

Fundraiser Title

Team Oakley

Amount Raised

$4,030

Fundraiser Title

Becky Reitz

Amount Raised

$3,405

 

114% Raised of $3,000 Goal

Donor Comments

Carley Kauble

Carley Kauble

DONATION: $150

3 years ago

Scott and Laurel Tippett

Scott and Laurel Tippett

DONATION: $50

Good luck Carley! We love you O!! 4 years ago

Anonymous

ANONYMOUS

DONATION: $200

4 years ago

Augie and Bobbie Jurishica

Augie and Bobbie Jurishica

DONATION: $100

5 years ago

Gwynne Weber

Gwynne Weber

DONATION: $25

Go Carley, Go!! 5 years ago

Zach Kauble

Zach Kauble

DONATION: $50

5 years ago

Carley Jurishica

Carley Jurishica

DONATION: $100

5 years ago