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Heather Vossler's Fundraiser:

Team O to Cure CMD - Kansas City Marathon

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BENEFITING: CURE CMD

ORGANIZER: Matt

EVENT DATE: Oct 19, 2013

Heather Vossler

THE STORY:

Matt Bloomfield wrote -

Our daughter Olivia was diagnosed with a rare form of congenital muscular dystrophy called CMD LAMA2, or merosin-deficient CMD. There is currently no cure or treatment for this disease. Most of the children with this condition will never walk and are faced with tremendous health challenges, as even a simple cough or runny nose can turn into a serious lung infection requiring hospitalization.  The lifespan of children with this disease is greatly shortened due to respiratory distress and most children do not live past young adulthood.

Olivia will never run, jump, or dance like we all did as children.   These kids struggle to lift their heads, bear weight on their arms and legs and most must navigate their lives from the confines of a wheelchair.  All of that said, there is significant hope in the medical community that treatments are within reach. Sara and I have been working with a not-for-profit called Cure CMD and a biotechnology company focused on a treatment for CMD to help fund and advance the initiatives for the treatments of Olivia’s condition.

So on October 19th, 2013 we will be Olivia's legs and she will fill our hearts.  As part of the Kansas City Marathon, we are creating a team to run in the race as an effort to find a cure for Olivia. 100% of the contributions raised for Cure CMD will be used to fund research. The race is comprised of a 5k, a half-marathon and a full marathon, which means anyone can realistically participate if they would like! Thank you for reading our story and supporting our cause, every thought, prayer, and dollar takes us one step closer to a cure.

DONATE

To This Fundraiser

$940

MONEY RAISED
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  • Heather Vossler

    $100

  • Myrl and Rebecca Vossler

    $100

  • Ryan and Michelle Bauer

    $20

  • Katie and Jason Baskin

    $50

  • Jen Nolander

    $50

  • Melanie and Max Faust

    $50

  • Jerry & Annie Forbis

    $50

  • Jordan & Emily Bohonek

    $20

  • Kurt & Jennifer Lindsey

    $50

  • Mindi King

    $20

  • Grant & Melissa Hamilton

    $50

  • Jeff Zadow

    $50

  • Bryan Krekse

    $100

  • Tonia Peters

    $50

  • Meghan Baumann

    $30

  • Katie and Quentin Berner

    $50

  • Jeremy, Mandi, Luka & Leo Schmidt

    $50

  • Nathan, Jaime, Lucy & Isaac Annis

    $50

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94% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $117,702 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sid and Susy Reitz

Amount Raised

$46,105

Fundraiser Title

Ryan Sciara

Amount Raised

$10,395

 

104% Raised of $10,000 Goal

Fundraiser Title

The Bloomfields

Amount Raised

$8,100

 

162% Raised of $5,000 Goal

Fundraiser Title

Ashley Webb

Amount Raised

$7,655

Fundraiser Title

Matt Bloomfield

Amount Raised

$6,955

 

14% Raised of $50,000 Goal

Fundraiser Title

Candy Siko

Amount Raised

$4,340

Fundraiser Title

Team Oakley

Amount Raised

$4,030

Fundraiser Title

Becky Reitz

Amount Raised

$3,405

 

114% Raised of $3,000 Goal

Donor Comments

Nathan, Jaime, Lucy & Isaac Annis

Nathan, Jaime, Lucy & Isaac Annis

DONATION: $50

4 years ago

Jeremy, Mandi, Luka & Leo Schmidt

Jeremy, Mandi, Luka & Leo Schmidt

DONATION: $50

4 years ago

Katie and Quentin Berner

Katie and Quentin Berner

DONATION: $50

4 years ago

Meghan Baumann

Meghan Baumann

DONATION: $30

4 years ago

Tonia Peters

Tonia Peters

DONATION: $50

4 years ago

Bryan Krekse

Bryan Krekse

DONATION: $100

4 years ago

Jeff Zadow

Jeff Zadow

DONATION: $50

4 years ago

Grant & Melissa Hamilton

Grant & Melissa Hamilton

DONATION: $50

4 years ago

Mindi King

Mindi King

DONATION: $20

God bless you - you are in my thoughts and prayers 4 years ago

Kurt & Jennifer Lindsey

Kurt & Jennifer Lindsey

DONATION: $50

4 years ago