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Kate & Brian Reddy's Fundraiser:

Team O to Cure CMD - Kansas City Marathon

Kate & Brian's Photo

BENEFITING: CURE CMD

ORGANIZER: Matt

EVENT DATE: Oct 19, 2013

Kate & Brian Reddy

THE STORY:

Matt Bloomfield wrote -

As many of you may know, our daughter Olivia was diagnosed with a rare form of congenital muscular dystrophy called MDC1A, or merosin-deficient CMD. There is currently no cure or treatment for this disease. Most of the children with this condition will never walk and are faced with tremendous health challenges, as even a simple cough or runny nose can turn into a serious lung infection requiring hospitalization.

While Olivia and other children with this disease battle each day to lift their heads, bear weight on their arms and legs or attempt to navigate their lives from the confines of a wheelchair, there is significant hope in the medical community that treatments are within reach. Sara and I have been working with a not-for-profit called Cure CMD and a biotechnology company focused on a treatment for MDC1A to help fund and advance the initiatives for the treatments of Olivia’s condition. However, the prevalence of this disease is quite small, and the major pharmaceutical companies have been more focused on drugs and treatments that will produce higher profits than a rare disease such as MDC1A.

This is where all of us have the ability to help Olivia and other children with muscle disease. As part of the Kansas City Marathon on October 19, 2013, we are creating a team to run in the race and to raise contributions for Cure CMD and the research they sponsor. The contributions raised for Cure CMD will be instrumental in the funding of research for congenital muscular dystrophy. The race is comprised of a 5k, a half-marathon and a full marathon, which means anyone can realistically participate if they would like! For those not able to run or walk, volunteers would always be welcome to help encourage runners and support their efforts. And for those not able to make it to Kansas City, any runner would welcome a contribution!

DONATE

To This Fundraiser

$2,105

MONEY RAISED
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  • Anonymous

    $50

  • Michael Goodman

    $25

  • Kathleen Mahon

    $25

  • Bev and Jerry Wright

    $100

  • Scott Bernstein

    $50

  • Brian, Kristin, Grace, Gabriel, and Noah

    $30

  • Bill Crotty and his girls

    $75

  • Caty

    $25

  • Billie and Mack Forrester

    $100

  • Maxwell's

    $100

  • Becky and Ron Sandhaus

    $100

  • The Omer Family

    $100

  • Andrew & JoAnna Carter

    $500

  • Steve & Alison Carter

     

  • Katy, Steve, Owen & Noah Keller

    $25

  • Anonymous

    $100

  • Ron & Marilyn Bailey

    $200

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211% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $117,702 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sid and Susy Reitz

Amount Raised

$46,105

Fundraiser Title

Ryan Sciara

Amount Raised

$10,395

 

104% Raised of $10,000 Goal

Fundraiser Title

The Bloomfields

Amount Raised

$8,100

 

162% Raised of $5,000 Goal

Fundraiser Title

Ashley Webb

Amount Raised

$7,655

Fundraiser Title

Matt Bloomfield

Amount Raised

$6,955

 

14% Raised of $50,000 Goal

Fundraiser Title

Candy Siko

Amount Raised

$4,340

Fundraiser Title

Team Oakley

Amount Raised

$4,030

Fundraiser Title

Becky Reitz

Amount Raised

$3,405

 

114% Raised of $3,000 Goal

Donor Comments

Ron & Marilyn Bailey

Ron & Marilyn Bailey

DONATION: $200

4 years ago

Anonymous

ANONYMOUS

DONATION: $100

4 years ago

Katy, Steve, Owen & Noah Keller

Katy, Steve, Owen & Noah Keller

DONATION: $25

4 years ago

Steve & Alison Carter

Steve & Alison Carter

Olivia Bloomfield 4 years ago

Andrew & JoAnna Carter

Andrew & JoAnna Carter

DONATION: $500

4 years ago

The Omer Family

The Omer Family

DONATION: $100

4 years ago

Becky and Ron Sandhaus

Becky and Ron Sandhaus

DONATION: $100

4 years ago

Maxwell's

Maxwell's

DONATION: $100

4 years ago

Billie and Mack Forrester

Billie and Mack Forrester

DONATION: $100

4 years ago

Caty

Caty

DONATION: $25

4 years ago