I am raising money for muscular dystrophy research through Cure CMD in hopes of progressing treatment options for Olivia Bloomfield, the daughter of my good friends Matt and Sara Bloomfield. Olivia was diagnosed with a rare form of congenital muscular dystrophy called CMD LAMA2, or merosin-deficient CMD. There is currently no cure or treatment for this disease. Most of the children with this condition will never walk and are faced with tremendous health challenges, as even a simple cough or runny nose can turn into a serious lung infection requiring hospitalization. The lifespan of children with this disease is greatly shortened due to respiratory distress and most children do not live past young adulthood.
Olivia will never run, jump, or dance like we all did as children. These kids struggle to lift their heads, bear weight on their arms and legs and most must navigate their lives from the confines of a wheelchair. All of that said, there is significant hope in the medical community that treatments are within reach.
As part of the Kansas City Marathon, I have joined a team that will be running in an effort to find a cure for Olivia. I am asking you to help by supporting my fundraising efforts with a tax-deductible donation. 100% of the contributions raised for Cure CMD will be used to fund research. Any contribution is appreciated, as every dollar takes us one step closer to a cure.