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Patrick and Rebecca May's Fundraiser:

Kansas City Marathon for Cure CMD

Patrick and Rebecca's Photo

BENEFITING: CURE CMD

EVENT DATE: Oct 19, 2013

Patrick and Rebecca May

THE STORY:

A little more than seven years ago, our beautiful daughter, Aubrey came into this world with a dimple and a cry.  We were overjoyed, but soon learned she had been born with a rare form of muscular dystrophy.  Imagine what it is like to have dreams and plans for your family and for your daughter; only to realize that she has a life-limiting illness that will prevent her from ever having a normal life, that she will never walk, and she will face an uphill battle of health issues as her body slowly deteriorates.  We were devastated, but quickly realized we couldn’t just sit back and do nothing.  We made a promise to Aubrey, and to ourselves, that we would do everything in our power to help her. 

Five years ago, along with two other families, we created the non-profit organization, Cure CMD.  Cure CMD’s mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies. Cure CMD will achieve this mission by working globally together with dedicated parent, government and research advocates. By focusing on this mission, Cure CMD will find and fund high potential research and clinical trials. There is currently no treatment or cure for congenital muscular dystrophy, but there are promising drug treatments on the horizon.  Over the past 5 years, Cure CMD has grown to an internationally recognized non-profit organization and directly funded more than $1,000,000 in research grants.  One of the main routes of raising funds for Cure CMD has been grass roots fundraising projects, including raising money through marathons run by family members of those with congenital muscular dystrophy.  This year, we have decided to organize a group of friends and family to participate in the Kansas City Marathon, and raise funds for Cure CMD.

Although Aubrey can’t run, walk, or even sit herself up in bed when she wakes up in the morning, she is an amazingly happy and smart little girl that brightens the life of anyone that gets to know her.   We have hope that Cure CMD will help fund research that will one day improve her quality of life, and the lives of all of the children that suffer from her disease.

Thank you so much for helping us keep that hope alive,

Pat and Becky May

www.curecmd.org

 

 

 

 

DONATE

To This Fundraiser

$16,924

MONEY RAISED
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  • Brent Wood

    $100

  • Jason Haney

    $50

  • Aaron Niemeier

     

  • Jan & Sharon Schmalz

     

  • Center for Adult Development

     

  • David Sitek

    $50

  • Jennifer & Greg Schrek

     

  • Anne and Tom Turnbull

    $50

  • David & Alyssa Kendrick

     

  • Nikole Zegunis

     

  • Eric and Susan Rahe

     

  • James Engle Custom Homes LLC

    $100

  • Kate Van Gorden

     

  • Lafferty Family

    $25

  • Andreasen Family

    $25

  • Jamie Kelley

    $10

  • Christa & Chris McQueen

    $25

  • David & Nancy Crowell

    $100

  • Joe & Angela King

     

  • The Lundberg Family

     

  • john kula

    $100

  • Stacie Kramer

    $50

  • Woody & Claudia Schindel

     

  • Sue & Dan Leis

     

  • Kristen and David Taylor

     

  • Joel, Katie & Calvin Buckley

     

  • Mark, Patricia, Natalie, Nicholas and Joanna May

     

  • Dustin and Liz Avey

     

  • Colliers International - Kansas City

     

  • Brian and Beth Schmalz

     

  • Heather & David Meyer

     

  • Illinois Tool Works Foundation

    $600

  • Katie & Steve Whiteing

     

  • Kevin & Meghan Buum

    $100

  • Donald and Tina Schmidt

    $50

  • Julie Zittergruen

    $25

  • Brennan Smith & Family

    $25

  • Voni and Troy Ferguson

    $25

  • Overlease

    $50

  • Jack & Patti Finlason

    $20

  • Kai Geraci

    $30

  • Kevin and Lisa Conley

    $100

  • Elliott & Michelle Homan

    $100

  • Maddy & Meredy Samuelson

    $100

  • Jan & Sharon Schmalz

     

  • Jan & Sharon Schmalz

     

  • Jan & Sharon Schmalz

     

  • Jan & Sharon Schmalz

     

  • James & Olivia Hartung

     

  • Illinois Tool Works

     

  • Melissa and Frank Hamilton

    $50

  • Brett and Heather Mattson

     

  • Ken and Karen Conklin

     

  • Josh and Lauren Worley

     

  • The Guenthner Family

    $25

  • Kevin & Joanne Ripple

     

  • The Narendran Family

     

  • Students, Families, & Staff of Cedar Creek Elementary - Sock It to CMD

    $834

  • Rod Stearns

    $25

  • Maureen Cardinale

    $10

  • Swearingen family

    $50

  • Curt & Brittany Brown

     

  • Jason and Melissa Lyons

     

  • Kathy Mayer

    $20

  • Dan and Barbara McNeil

    $25

  • Jim and RoseMarie McNeil

    $25

  • Lynn Stearns

    $10

  • Anne Richards

    $25

  • Bob & Laurie Welch

    $25

  • Kathy and Richard Geraci

    $100

  • Phil & Ann Gaines

    $50

  • Team Sanchez

    $50

  • Angie Davis

    $50

  • Superior Structures

     

  • Rob & Teresa Loney

    $25

  • Staci and Creighton O'Neal

    $50

  • Friends & Neighbors

    $100

  • Tom and Maureen Coulter

     

  • Amanda Clements

    $40

  • Sperry Family

    $100

  • David and Cynthia Ogan

    $100

  • Anonymous

    $25

  • Renee & Kayla Kramer

    $20

  • Day Family

     

  • Jennifer & Kevin McCalmon

     

  • Chris Kramer

    $30

  • Dustin Kramer

    $20

  • Marlene and Tony Wedel

    $25

  • Mark and Amy Cooper

    $50

  • Jen and Jeremy Kirkpatrick

    $50

  • Gelvin

    $50

  • Tiffany Banyard

    $20

  • Ari Hernandez

    $20

  • Karnei Family

     

  • jeff, chello & anna

    $160

  • Andrea Grist & Family

    $25

  • Grady, Teri and Audrey Stolz

     

  • Patrick and Rebecca May

     

  • The Titus family

    $100

  • Debbie Ambrosino Cappiccille

    $100

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68% Raised of $25,000 Goal

Fundraise for this Campaign

The Team: $16,924 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Patrick and Rebecca May

Amount Raised

$11,104

 

44% Raised of $25,000 Goal

Fundraiser Title

Kristen Taylor

Amount Raised

$2,440

Fundraiser Title

Susan Rahe

Amount Raised

$660

Fundraiser Title

Nate & Felicia Geraci

Amount Raised

$620

Fundraiser Title

Anne Rahimian

Amount Raised

$600

Fundraiser Title

Amy Cooper

Amount Raised

$375

Fundraiser Title

Michelle Julian

Amount Raised

$205

 

8% Raised of $2,500 Goal

Fundraiser Title

Cathy Denesia

Amount Raised

$200

Donor Comments

Debbie Ambrosino Cappiccille

Debbie Ambrosino Cappiccille

DONATION: $100

Dear Patrick and Rebecca, thank you so very much for starting up (along with the other families) this fundraiser for CMD. My great nephew Finley was born with it last year and we didn't know what to do. I did some research and very quickly put together a team of runners for the NJ 1/2 marathon. Our little team, in less than 3 months, earned about $13,000 in donations. This year we are running in the Utica,New York Boilermaker Marathon. Aubrey is a beautiful child as is my Finley. We have joined the fight with you. Good luck, God Bless and Thank you. l Debbie 4 years ago

The Titus family

The Titus family

DONATION: $100

4 years ago

Patrick and Rebecca May

Patrick and Rebecca May

4 years ago

Grady, Teri and Audrey Stolz

Grady, Teri and Audrey Stolz

Proud to know the May family...full of life, love and kindness! 4 years ago

Andrea Grist & Family

Andrea Grist & Family

DONATION: $25

4 years ago

jeff, chello & anna

jeff, chello & anna

DONATION: $160

Aubrey!! 4 years ago

Karnei Family

Karnei Family

4 years ago

Ari Hernandez

Ari Hernandez

DONATION: $20

4 years ago

Tiffany Banyard

Tiffany Banyard

DONATION: $20

4 years ago

Gelvin

Gelvin

DONATION: $50

4 years ago