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CureDuchenne

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CureDuchenne
CROWDRISE FEATURED : Jul 28, 2010
Tax ID: 20-0299958
BASED: Newport Beach, CA, United States

CHARITY WEBSITE: www.cureduchenne.org

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For this Charity

$67,523

Money Raised on Crowdrise

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Cure Duchenne

CureDuchenne's mission is to save the lives of children with Duchenne muscular dystrophy. Our mission is our name...to cure Duchenne.

CureDuchenne is a national nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy.

Duchenne is an inherited genetic disease with no treatment or cure. Duchenne causes progressive muscle degeneration, often leaving patients wheelchair bound by their mid-teens. The average life expectancy of someone with Duchenne is their mid-20s.

 

The organization was founded by Paul and Debra Miller in 2004 after their son was diagnosed with Duchenne. At the time, there was not an organization focused exclusively on finding a cure for Duchenne. Today, the world’s leading scientists are working with CureDuchenne to help determine the most viable research projects and to accelerate the clinical trial process. To date, seven research projects that CureDuchenne has funded have advanced into human clinical trials Three of these pharmaceutical treatments could be approved by the FDA within the next year.

These treatments may lessen the effects of the disease with certain mutations of Duchenne, but there is still much work to be done to find a cure.  Our goal is to halt the progress of the disease by bringing potential life-saving drugs to help this generation of Duchenne boys.

Tax ID: 20-0299958 • www.cureduchenne.org

Fundraisers

CureDuchenne

CureDuchenne

Amount Raised:

$0

2017 Austin Marathon

2017 Austin Marathon

Amount Raised:

$21,540

 

215% Raised of $10,000 Goal

In Memory of Alex Fisher

In Memory of Alex Fisher

Amount Raised:

$7,185

 

719% Raised of $1,000 Goal

David GW Fund

David GW Fund

Amount Raised:

$9,110

 

30% Raised of $30,000 Goal

Pedaling 1500 kilometers closer to the cure

Pedaling 1500 kilometers clo…

Amount Raised:

$565

 

57% Raised of $1,000 Goal

Duchenne muscular dystrophy

Duchenne muscular dystrophy

Amount Raised:

$550

 

6% Raised of $10,000 Goal

Hope for Dillion

Hope for Dillion

Amount Raised:

$9,740

 

97% Raised of $10,000 Goal

Cure Duchenne with Malena and Tom

Cure Duchenne with Malena an…

Amount Raised:

$0

 

0% Raised of $1,000 Goal

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Events

Give hope to the 87% without treatment

Give hope to the 87% without treatm...

Amount:

$435

 

5% Raised of $8,700 Goal