Skip to content
kaitlinbrown's profile image - click for profile

Kaitlin Brown's Fundraiser:

Running For Annie!

Kaitlin's Photo
 

WE DID IT!
November 07, 2016

WE DID IT! Thank you to everyone who donated! I could not of done it without you! Not only did we raise 160% of our goal but we also spread the  See more

BENEFITING: Curefa Foundation Inc

EVENT: 2016 TCS NEW YORK CITY MARATHON

EVENT DATE: Nov 06, 2016

Kaitlin Brown

THE STORY:

Hi everyone, on November 6th, 2016 I will be running the TCS New York City Marathon on behalf of my friend Annie Hamilton.

Three years ago when Annie was nine, her life changed forever as she was diagnosed with an usually rare disease called Friedreich's Ataxia. Friedreich's Ataxia (FA) is degenerative neuromuscular disease. Its effects are devastating. Initially impacting balance and coordination, the disease then leads to long term medical conditions; scoliosis, diabetes, vision and hearing loss, as well as serious heart conditions. Like Annie patients are generally diagnosed between the ages of 5 and 15. While FA progresses at a different pace for each individual, most require a wheelchair ten years after diagnosis and face an extremely shorted life expectancy. Annie is one of 15,000 people living with this condition worldwide.

Since her diagnosis Annie's parents Tom and Karen Hamilton have started The CureFA Foundation to advance and support FA research. Unlike most other debilitating diseases, FA is a single gene defect and that gene has been identified. Researchers rarely use the word "cure" when studying a rare disease with no approved therapies, but with FA that word is now a part of the lexicon. With the many clinical trials and cutting edge therapies currently in place, we feel the time is now to make a significant investment in advancing FA research. At this critical juncture. we know we can chance the course of Friedreich's Ataxia, which is why I am asking for your support now. A cure is in reach.

On behalf of Annie and the many thousands of children and families living with FA, we extend our deepest thoughts.

Please donate to help CureFA! Thank you.

For more information about Annie and FA visit CUREFAFOUNDATION.ORG

$8,075

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Anonymous

     

  • Sean & Kaitlin

    $100

  • The Trimbles

    $100

  • Jack Kelly

     

  • Haley Kaloostian

    $20

  • Your Favorite Cousin, John

    $100

  • Isabella Yzerman

    $100

  • Patrick Brown

    $100

  • ReRe Corcoran

    $100

  • ReRe Corcoran Jewelry

    $100

  • Connor May

     

  • AJ Taylor

    $50

  • Anonymous

    $1,000

  • "Magic"

    $500

  • Kaitlin's Godfather and faux Godmother

    $500

  • Anonymous

    $100

  • The McLane Family

    $500

  • mom and dad

    $1,000

  • Faliski Family

    $150

  • Dolik Family

    $100

  • Joey Magliocco

    $500

  • Sherrie and Bud Howey

    $100

  • The Fleming Family

    $100

  • Melissa Gembis

    $100

  • Anonymous

    $200

  • Alicia Dibos

    $100

  • Lucy Rotondo Galea

     

  • Charlie, JP, Duke &Griffin

    $250

  • Kelsey & Bridget

    $200

  • Lauren and Freddy Powers

    $500

  • Kathy, Mark, Max,Grace and Sean

    $500

  • Lynn and Frank Mara

    $500

  • Stephen and Nancy Mara

    $100

  • Husnia

    $100

  •  
  •  
  •  
 

162% Raised of $5,000 Goal

The Team: $8,075 TOTAL RAISED SO FAR

Fundraiser Title

Kaitlin Brown

Amount Raised

$8,075

 

162% Raised of $5,000 Goal

Donor Comments

Husnia

Husnia

DONATION: $100

For Annie 1 year ago

Stephen and Nancy Mara

Stephen and Nancy Mara

DONATION: $100

1 year ago

Lynn and Frank Mara

Lynn and Frank Mara

DONATION: $500

1 year ago

Kathy, Mark, Max,Grace and Sean

Kathy, Mark, Max,Grace and Sean

DONATION: $500

Go Kaitlin! 1 year ago

Lauren and Freddy Powers

Lauren and Freddy Powers

DONATION: $500

1 year ago

Kelsey & Bridget

Kelsey & Bridget

DONATION: $200

Good luck!!! 1 year ago

Charlie, JP, Duke &Griffin

Charlie, JP, Duke &Griffin

DONATION: $250

1 year ago

Lucy Rotondo Galea

Lucy Rotondo Galea

1 year ago

Alicia Dibos

Alicia Dibos

DONATION: $100

You go girl!!!! 1 year ago

Anonymous

ANONYMOUS

DONATION: $200

Your The Best KB Have FUN 1 year ago