Thank you for visiting my fundraising page!
Chloe Belle Britten was diagnosed in January 2010 with Juvenile DermatoMyositis at the age of 3 years, 11 months. She had symptoms for 6 months before being diagnosed. When Chloe was diagnosed, she couldn't climb stairs, get into her car seat, get in or out of bed, couldn't get up from the floor without help, and fell all the time. After 2 weeks of treatment, she could climb several stairs before tiring out. Now, after 79 solumedrol IV infusions, 42 IVIG infusions, 208 chemo shots (and counting), and several other daily medicines, numerous blood draws for labs, 1 muscle biopsy, 1 swallow study, 2 MRIs, several x-rays, annual eye checks, physical therapy muscle checks, many aches & pains and lots and lots of tears, she is doing fairly well. PRAISE THE LORD!!
Chloe stopped her daily steroid (after a long taper) in October 2011 because she was doing so well, but unfortunately had a flare in December 2011 and had to start the IV meds again. She missed school for the infusions because they are 8 hours long. Her last infusion was in June 2012. She had to increase her chemo dosage and start a new medicine in October 2012 which seems to be helping with her symptoms. The goal is remission with no medicines to take and no symptoms. We are still years away from this however. The looming threat of it returning or a flare is always there.
Cure JM Foundation is an all-volunteer non-profit organization which was created and is managed by families of children with Juvenile Myositis (JM). Cure JM Foundation’s mission is to provide support to families coping with JM, raise awareness of JM and fund research that will ultimately lead to a cure.
JM is a rare autoimmune disease in which the body's immune system attacks its own cells and tissues. For many children with JM, it's a challenge to simply stand up or sit down and can be life-threatening. This rare disease affects approximately 2-4 children out of a million.
The Foundation’s aspirational goal is to never, ever let another child suffer with Juvenile Myositis. With your help, this goal may be well within reach some day.
Chloe needs a cure along with all the other kids that have this awful disease. We ask for your continued prayers. Please consider a donation to help fund research to find a cure. This is an orphan disease that does not get a lot of funding or publicity. Chloe and all the other kids need your help. Any amount, large or small helps!
With much love,
Britten & Lopez families