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Noreen Saathoff's Fundraiser:

Ironman for a Cure for Juvenile Myositis

Noreen's Photo
Noreen's Photo

BENEFITING: Cure JM Foundation

ORGANIZER: Heather

EVENT: Endurance

EVENT DATE: Oct 11, 2015

Noreen Saathoff

THE STORY:

Heather Wakey wrote -

Together we can reach our goal of raising $10,000 for Juvenile Myositis research before the Ironman Louisville on October 11th.  Join the team by making a gift now!!

And for those of you that do not know me, my name is Rende Langlois (that’s me in the sweet ol’ swim cap in the picture).  Over the past few years, I have tackled a handful of races of many different lengths- some 5k’s, a couple of 10k’s, some obstacle courses, some sprint triathlons, a few half-marathons, and even the full Chicago Marathon.  I am by no means a natural born runner.  I am more like a bull headed chubby kid that likes a good challenge every now and again.  This October, I am going to be taking on my biggest challenge yet, and I need your help!

This October 11th, I am going to be participating in the 2015 Louisville Ironman Triathlon.  A full Ironman consists of a 2.4-mile swim, a 112-mile bike, and a 26.2-mile run, in that order.  My goal is finish this race in under 14 hours.  Aside from this being something to scratch off my bucket list, I want to help raise money for a special charity along the way. 

That’s where you all can help!  I am racing to raise money for Cure JM Foundation, a non-profit organization created and managed by families of children with JM.

 

JM stands for Juvenile Myositis, a rare autoimmune disease in which the body’s immune system attacks its own cells and tissues. For many children with JM, everyday simple tasks can be challenging.  It can be hard to simply stand up or sit down.  Extreme fatigue and weak, painful muscles make walking difficult and running or climbing stairs next to impossible. Approximately 2-4 children per million are diagnosed in the United States every year. 

The reason I want to raise money for this awareness is one of my closest friend’s daughter, Kendahl, was diagnosed with JM a few years back.  Kendahl’s battle with JM has not been an easy one.  It has meant countless hospital visits, check-ups, and prescriptions.  Thankfully, she is currently on her last round of medication, with the hopes of pushing the disease into remission.  Unfortunately, how long it will stay in remission is unknown.  Different factors such as sunlight or a virus can trigger a relapse; and when a relapse occurs, that usually means more time in the hospital and years of treatments.

Although medications can help alleviate the symptoms of JM, the disease has no known cure...YET!  Together we can help change that!  By donating to Cure JM Foundation, you will be helping aid them in their mission of providing support for families coping with JM, raise awareness for JM, and fund research that will ultimately lead to a cure for JM. 

Listen… I will do the hard part of racing for a solid 140.6 miles straight.  All you have to do is donate a little money.  I don’t care if it’s $1 or $1,000 (which would be awesome if someone actually donated $1,000!!!).   Any little bit helps!  So please folks, lets all get together and see what difference we can make on the CureJM Foundation!  Give once or give often!

 

Together we can reach my goal of raising $10,000 for JM research before the race begins on October 11th.  Join the team by making a gift here!!

 

Thanks for taking the time to hear me out.  Please feel free to shoot me an email at rglangl@gmail.com if you have any questions or comments or words of encouragement as I continue training!  Lord knows I need them!

Keep on keep’n on!!!

The Team: $6,846 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Heather Wakey

Amount Raised

$6,846

 

68% Raised of $10,000 Goal

Fundraiser Title

Noreen Saathoff

Amount Raised

$0

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