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Joshua Nickell's Fundraiser:

Running for Cara.

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Joshua Nickell via Crowdrise
October 13, 2010

This is an amazing opportunity for everyone to come together and help Cara! Please help us out by making a donation!  See more

BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

ORGANIZER: RIchard

EVENT DATE: Oct 31, 2010

Joshua Nickell

THE STORY:

RIchard Dawson wrote -

When I first met Cara, at the coffee shop in our university, I didn’t ask her why she walked with a cane and a limp.

Hereditary Inclusion Body Myopathy (HIBM) is a rare genetic disorder that strikes healthy adults in their 20s. Muscles progressively weaken, leading to severe disability within 10-15 years. Most patients are eventually confined to a wheelchair. As Cara and I became friends, I noticed that she never left her apartment without a leg brace. I learned about the confusion surrounding HIBM: Cara first knew something was wrong only when she began to unexpectedly fall while dancing. Even then, years of misdiagnosis followed until she was finally told she had HIBM in 2007. I’ve witnessed the progression. By the time classes ended and I moved back to the States, she had adopted a second brace in order to provide her the stability to walk. My reaction was one of confusion and fear- terrified that things would progress, uncertain for my new friend’s future; and to a point, selfishly afraid. It was terrifying to see a vibrant, young person affected by this terrible disorder in the prime of her life. How would I have been able to handle something like this?

Talk about redefining one’s perspective. A childhood of sports, six years in the military, and a recent obsession with Crossfit have made me an extremely fit person. Like most of us, I take this for granted. I’d had a few “painful” moments in my life, or so I thought: a couple knee surgeries; associated experiences with heavy packs, body armor and Iraqi summers; and stress fractures while running a marathon. Perhaps you can imagine how insignificant, even shallow I felt after meeting someone that not only lives with pain in every step, but also still treasures each; knowing that there might be a time when walking is no longer possible. Cara and I traveled together a few times; allowing me a small view of life with HIBM. Here’s what I learned: not all hotels have elevators, always plan taxis ahead of time, and carry extra painkillers. To put it simply, I no longer take every step for granted.

To that end, I’m running for Cara a marathon, something I swore to never do again- to help raise money to fund the cure for HIBM. Perhaps my dear friend, and others with HIBM, can one day run one with us; afterwards we’ll laugh and complain about the “pain” in our feet together; knowing that we’re blessed to have it.
Event: October 31st, Washington DC marathon. Please donate and forward.

DONATE

To This Fundraiser

$150

MONEY RAISED
  • Anonymous

    $50

  • Jake

    $50

  • Kent

    $50

  •  
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Fundraise for this Campaign

The Team: $18,143 TOTAL RAISED SO FAR

Fundraiser Title

RIchard Dawson

Amount Raised

$17,538

 

88% Raised of $20,000 Goal

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Hoops For Harmony

Amount Raised

$400

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Joshua Nickell

Amount Raised

$150

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Vincent Schoeck

Amount Raised

$35

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BikeForKam Kam

Amount Raised

$20

Fundraiser Title

imad sayeed

Amount Raised

$0

Donor Comments

Kent

Kent

DONATION: $50

7 years ago

Jake

Jake

DONATION: $50

7 years ago

Anonymous

ANONYMOUS

DONATION: $50

7 years ago