Skip to content
belenhathaway's profile image - click for profile

Belen Hathaway's Fundraiser:

Cure JM Foundation

Belen's Photo
Belen Hathaway

THE STORY:

Please help us find a cure for Melic.

Melic was diagnosed with a rare, life-threatening disease in 2009 called Juvenile Myositis. 

In late August 2009 Melic became ill, after seeing his PCP and being in and out of the ER I decided I would drive him up to Seattle Childrens myself in hopes that someone could tell me what was going on with my son. Within 10 minutes of him being in the ER at Seattle Childrens Hospital I was told Melic would not be going home and if I had waited we would have lost him within a week. Fear spread though my body and the realization set in we are here for a while. Sept 14, 2009 Melic was diagnosed with Juvenile Dermatomyositis now know as JM. 

Juvenile Myositis (JM) is a rare, life-threatening disease where the immune system attacks a child’s own cells and tissues.  Juvenile Myositis can attack nearly all systems of the body including the heart, lungs, digestive system and more.  When Melic's body attacks itself, it causes intense muscle pain and debilitating weakness and fatigue.  Children often cannot attend school and many are hospital-bound.  Juvenile Myositis also causes a wide range of medical complications. 

And although Juvenile Myositis can be treatable, oftentimes the treatments are worse than the disease itself, causing nausea, migraines and life-long side-effects.  Melic has had to undergo high-dose steroid infusions and IVIG treatments. 

Melic was in and out of Seattle Children's Hospital for the next 4 months getting his steroid infusions and IVIG treatments, unable to go to school because of the side effects of the steroids and variouse other medications (28 pills a day) and the fear of illness he was homeschooled. After almost 6 months Melic set foot in his school for the first time and re-enrolled in the 4th grade.

After 4 years of treatments we are happy to say that Melic has been taken off all steroid infusions and is looking forward to being off all IVIG treatments Lord willing soon! Melic is currently playing for Tri-Cities Jr Americans Hockey league thanks to these treatments that with out them he would not be as healthy. Melic's future lookes bright as he continues to gain his straingth and stamina back and is able to do what he loves the most play Hockey.  As a mother, I am thankful for the research that has brought our some back to the child he was before. Only with these treatments could it be possible and only with your help can it be possible to continue finding better treatments for kids like Melic around the world. Please help us raise money for those still struggling with the day to day struggle of this disease.

Over 95% of all donations go directly to live-saving research.  The generosity of friends and family like you has helped establish the first Juvenile Myositis research centers in Chicago and Washington, D.C. and funded the first-ever book solely about Juvenile Myositis.  Cure JM Foundation is a 501(c)3 non-profit and is the largest charitable supporter of Juvenile Myositis research.  

 

Please help us reach our goal to raise $3,000 to find a cure for all the children like Melic.


We Thank You and are eternally grateful for your help.

$0

MONEY RAISED
  •  
  •  
  •  

The Team: $303,058 TOTAL RAISED SO FAR

Fundraiser Title

Madison Coffey

Amount Raised

$102,000

Fundraiser Title

Cure JM Foundation

Amount Raised

$53,616

 

27% Raised of $200,000 Goal

Fundraiser Title

Shari and Tom Hume

Amount Raised

$26,565

 

266% Raised of $10,000 Goal

Fundraiser Title

Kristen Smedley

Amount Raised

$15,575

 

312% Raised of $5,000 Goal

Fundraiser Title

Shannon Malloy

Amount Raised

$14,750

 

738% Raised of $2,000 Goal

Fundraiser Title

Jacquelyne DenUyl

Amount Raised

$10,600

Fundraiser Title

Erin Karchefsky

Amount Raised

$7,060

 

353% Raised of $2,000 Goal

Fundraiser Title

Kristine Alderfer

Amount Raised

$6,792

Donor Comments