BENEFITING: Cure JM Foundation
ORGANIZER: Cure JM Foundation
Joaquin is physically doing well, the disease Thank God hasn't affected his muscles. The only thing that it is affecting is his skin.
His face and ears are red 80% of the time. So he looks like he has a rash all over his face. Right now he is taking on a lot of steroids/ medicine daily and undergoing a treatment monthly to add to the steroids that he is taking orally. This is in infusion at the CHOC clinic where he stays for several hours. They also want to add another infusion of blood with antibodies to give him a boost. We are waiting for authorization from the insurance because it is a costly procedure. Thank you all for your prayers and help!