BENEFITING: Cure JM Foundation
EVENT DATE: Oct 13, 2013
Marcia Jzyk wrote -
Welcome to our fundraising page to benefit the Cure JM Foundation!
We have a team of runners for the United HealthCare Newport Marathon being held in Newport, RI on October 13, 2013. Please sponsor us by donating to this charity.
Our 6 year old daughter Keira has JDM and she needs a cure!
Juvenile Myositis (JM) including Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), is an autoimmune disease in which the body's immune system attacks its own cells and tissues. Weak muscles and skin rash are the primary symptoms of JDM, while muscle weakness without a rash is the primary symptom of JPM. For many children with JDM, it's a challenge to simply stand up or sit down and can be life-threatening. This rare disease affects approximately 2-4 children out of a million. There is NO CURE.
The Cure JM Foundation is an all-volunteer non-profit organization which was created and is managed by families of children with Juvenile Myositis (JM). Cure JM Foundation’s mission is to provide support to families coping with JM, raise awareness of JM and fund research that will ultimately lead to a cure.
The Foundation’s aspirational goal is to never, ever let another child suffer with Juvenile Myositis. With your help, this goal may be well within reach some day.
To learn more please visit www.curejm.org
Please consider DONATING today! No amount is too small!