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Calliope Joy Foundation

FEATURED CHARITY

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Calliope Joy Foundation
CROWDRISE FEATURED : Jul 13, 2016
Tax ID: 90-1005140
BASED: Bala Cynwyd, PA, United States

CHARITY WEBSITE: www.thecalliopejoyfoundation.org

Making miracles possible

Cal's Foundation supports families, research, and helps to improve the care and treatment available to children with the 50 forms of leukodystrophy.

In 2013, we started selling cupcakes for $1 each to help children with leukodystrophy. That bake sale has grown into Cal’s Cupcake Challenge, and now we fund research, support families, and offer travel grants for families seeking treatment across the globe. In 2015, our foundation helped establish the nation's first Leukodystrophy Center of Excellence at the world-renowned Children’s Hospital of Philadelphia

We believe “cupcakes can change the world.”

What is leukodystrophy?  Many leukodystrophies are caused by "broken genes" not producing enzymes needed for the healthy development of the brain's white matter (or myelin). Children with leukodystrophy appear normal but  lose the ability to walk, talk, eat and see.  There are 50 forms of the disease affecting approximately 1 in 7400 live births.  All forms of the disease are fatal.

Who is Calliope? Calliope "Cal" Joy Carr is the youngest child of Pat Carr and Maria Kefalas. At age the of two, Cal was diagnosed with late-infantile onset metachromatic leukodystrophy. Four year later, Cal no longer walks or talks and she receives hospice care at her home in Bala Cynwyd, PA. Because of her amazing team of doctors and nurses Cal laughs and smiles every day. Named for Calliope, the Greek goddess of music and poetry who inspired beauty in the world, Cal inspires all who know her to help families and children affected by leukodystrophies. 

Tax ID: 90-1005140 • www.thecalliopejoyfoundation.org

Fundraisers

Music is the best medicine: Kind Pediatric Hospice Unit Music Therapy program

Music is the best medicine: …

Amount Raised:

$0

 

0% Raised of $10,000 Goal

Howard's Million Step Walk for the Calliope Joy Foundation

Howard's Million Step W…

Amount Raised:

$781

 

39% Raised of $2,000 Goal

Team Cupcake

Team Cupcake

Amount Raised:

$9,165

 

46% Raised of $20,000 Goal

TJ's Travel Fund and Care Packages

TJ's Travel Fund and Ca…

Amount Raised:

$7,675

 

77% Raised of $10,000 Goal

Making miracles possible for kids with leukodystrophy

Making miracles possible for…

Amount Raised:

$39,782

 

40% Raised of $100,000 Goal

Events

Team Cupcake

Team Cupcake

Amount:

$10,965

 

55% Raised of $20,000 Goal