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Patrick Neff's Fundraiser:

Cure SMA Pittsburgh 2016

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BENEFITING: Cure SMA

ORGANIZER: Cure SMA

EVENT: Pittsburgh Marathon 2016

EVENT DATE: May 01, 2016

Patrick Neff

THE STORY:

Spinal Muscular Atrophy (SMA) is the number one genetic cause of death for infants. Cure SMA is dedicated to the treatment and cure of SMA, and funds groundbreaking research and provide families the support they need for today.

I have a personal connection to this cause. Two of my closest friends have SMA - Heather is 27 and Jess is 25. I have known both of them since high school and we remain close to this day. By participating in Cura SMA's Pittsburgh Half Marathon, I am hoping to raise awareness and money not only for my two friends, but for all of those affected by this disease.

Heather and Jess have been dealing with this disease all of their lives, as SMA is a genetic condition and they were both diagnosed as infants.  However, they have not let the disease hold them back from living their lives to the fullest.  It has not been easy for them, and life has presented many struggles, but they both continue to work hard in their lives to be productive, contributing members of society.  Both have their undergraduate degrees, and are working full time while also pursuing graduate degrees.

I have been hoping and praying for any treatment/cures for this disease.  Recently, there has definitely been progress in terms of medical advancements, and Cure SMA has been instrumental in providing funding to forward this research, but they always need more help.  I encourage you to go to the Cure SMA website (curesma.org) to read about some of the exciting studies that are going on.

Finally, I would hope that you consider donating to my Cure SMA page here so I can reach my fundraising goal of $750, all of which goes to Cure SMA.

$1,190

MONEY RAISED
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  • Anonymous

    $50

  • Ray and Corky Neff

    $50

  • Susan Grandillo

    $50

  • Heather

    $50

  • Steve and Terry Bowes

    $50

  • Paul Neff

    $25

  • CenTINAro family

    $50

  • Aneesha

    $100

  • Mark Steven Pytel

    $50

  • Tori

    $25

  • Anonymous

     

  • Linda and Chris Neff

    $25

  • Katie Cass

    $50

  • Katie Keeley

    $25

  • John Cessna

    $50

  • Anonymous

    $25

  • Rob and Missy Cashdollar

    $50

  • Katy

    $25

  • Jim Kerchenfaut

    $50

  • Lisa

    $20

  • John and Karen Hogya

    $25

  • Glenn and Chris Graham

    $25

  • Sally Lozovoy

    $25

  • Anonymous

    $50

  • Ruairi Salmon

    $50

  • Patti Bonn

     

  • Rich & Marilyn Cashdollar

    $50

  • Sue Prescott

    $25

  • Carol & Larry Froehlich

    $25

  • Jess

    $20

  • Deb Felix

    $20

  • Aunt Tracy

    $20

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Fundraise for this Campaign

The Team: $5,811 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Carolyn Tomko

Amount Raised

$2,925

 

293% Raised of $1,000 Goal

Fundraiser Title

Carson Gross

Amount Raised

$1,426

 

143% Raised of $1,000 Goal

Fundraiser Title

Patrick Neff

Amount Raised

$1,190

Fundraiser Title

Stephen Becker

Amount Raised

$270

Donor Comments

Aunt Tracy

Aunt Tracy

DONATION: $20

2 years ago

Deb Felix

Deb Felix

DONATION: $20

2 years ago

Jess

Jess

DONATION: $20

2 years ago

Carol & Larry Froehlich

Carol & Larry Froehlich

DONATION: $25

2 years ago

Sue Prescott

Sue Prescott

DONATION: $25

2 years ago

Rich & Marilyn Cashdollar

Rich & Marilyn Cashdollar

DONATION: $50

2 years ago

Patti Bonn

Patti Bonn

2 years ago

Ruairi Salmon

Ruairi Salmon

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

Sally Lozovoy

Sally Lozovoy

DONATION: $25

2 years ago