Spinal Muscular Atrophy (SMA) is the number one genetic cause of death for infants. Cure SMA is dedicated to the treatment and cure of SMA, and funds groundbreaking research and provide families the support they need for today.
I have a personal connection to this cause. Two of my closest friends have SMA - Heather is 27 and Jess is 25. I have known both of them since high school and we remain close to this day. By participating in Cura SMA's Pittsburgh Half Marathon, I am hoping to raise awareness and money not only for my two friends, but for all of those affected by this disease.
Heather and Jess have been dealing with this disease all of their lives, as SMA is a genetic condition and they were both diagnosed as infants. However, they have not let the disease hold them back from living their lives to the fullest. It has not been easy for them, and life has presented many struggles, but they both continue to work hard in their lives to be productive, contributing members of society. Both have their undergraduate degrees, and are working full time while also pursuing graduate degrees.
I have been hoping and praying for any treatment/cures for this disease. Recently, there has definitely been progress in terms of medical advancements, and Cure SMA has been instrumental in providing funding to forward this research, but they always need more help. I encourage you to go to the Cure SMA website (curesma.org) to read about some of the exciting studies that are going on.
Finally, I would hope that you consider donating to my Cure SMA page here so I can reach my fundraising goal of $750, all of which goes to Cure SMA.