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Maxime Jeanne's Fundraiser:

Cure Spinal Muscular Atrophy

Maxime's Photo
 

Maxime Jeanne via Crowdrise
January 16, 2012

Completed the marathon in 4:08:30. A bit disappointed, but happy to have crossed the line, thanks to your support!  See more
Maxime Jeanne

THE STORY:

Spinal Muscular Atrophy (SMA) is a genetic neuromuscular disease characterized by muscle atrophy and weakness. The disease generally manifests early in life and is the leading genetic cause of death in infants and toddlers. SMA is caused by defects in the Survival Motor Neuron 1 (SMN1) gene that encodes the SMN protein. The SMN protein is critical to the health and survival of the nerve cells in the spinal cord responsible for muscle contraction (motor neurons).

This disease affects thousands of families in the U.S. and around the world and causes premature deaths of children. Many people are carriers of the recessive gene and could be affected, without there being any cure for it. My wife and I are expecting a little boy shortly after the NYC marathon and thought for a moment that we would be affected. Thankfully, we are not, but wanted to help families who are not as lucky as us.

All donations (less the Crowdrise collection fee) will be handed over to the SMA Foundation of New York City, which is doing a great job helping research towards the development of a treatment!

 

PS: If you are interested, there was a recent article on Bloomberg about SMA and the SMA Foundatio (there is also a TV piece about it) http://bloom.bg/p64erU

http://www.smafoundation.org/

$2,046

MONEY RAISED
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  • Bjorn

    $150

  • Laura Jeanne

    $100

  • Equivio

    $250

  • Enzo

    $200

  • JD

    $100

  • Dan & Melissa

    $50

  • Amy, Chad & Ryder

    $100

  • Karin

    $50

  • Nick Manocha

    $50

  • Seb

    $50

  • Wendy Oxendine & Chris Gowin

    $100

  • Tom & Barbara Panzarella

    $100

  • Antoine B

    $20

  • Nicole

    $50

  • Ayse

    $50

  • Steven

    $50

  • Benjamin Fiaud

    $100

  • Sanjay

    $50

  • Bruno

    $50

  • Antoine

    $75

  • Brigitte et Jacques Hedouin

    $100

  • Anderson Peak Performance

     

  • Dana Siomkos

    $50

  • Kerry & Paul

    $50

  • Tommy, Shannon, & Lena

     

  • Marie-Joelle Auclair

    $25

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68% Raised of $3,000 Goal

Fundraise for this Campaign

The Team: $2,046 TOTAL RAISED SO FAR

Fundraiser Title

Maxime Jeanne

Amount Raised

$2,046

 

68% Raised of $3,000 Goal

Fundraiser Title

Nick Manocha

Amount Raised

$0

Fundraiser Title

Kerry Shaw

Amount Raised

$0

Fundraiser Title

Brigitte Hédouin

Amount Raised

$0

Fundraiser Title

Benjamin Fiaud

Amount Raised

$0

Donor Comments

Marie-Joelle Auclair

Marie-Joelle Auclair

DONATION: $25

Félicitations et bonne chance! 6 years ago

Tommy, Shannon, & Lena

Tommy, Shannon, & Lena

6 years ago

Kerry & Paul

Kerry & Paul

DONATION: $50

We're so proud of you! Good luck on Sunday xx 6 years ago

Dana Siomkos

Dana Siomkos

DONATION: $50

Bravo, Max. Best of luck!!! xo Dana 6 years ago

Anderson Peak Performance

Anderson Peak Performance

6 years ago

Brigitte et Jacques Hedouin

Brigitte et Jacques Hedouin

DONATION: $100

A very good project, we are behind you my Son ! 6 years ago

Antoine

Antoine

DONATION: $75

Andale Max!!! You'll see 26 miles is an amazing "walk" in the City! Abrazo Antoine 6 years ago

Bruno

Bruno

DONATION: $50

Bon courage ! 6 years ago

Sanjay

Sanjay

DONATION: $50

6 years ago

Benjamin Fiaud

Benjamin Fiaud

DONATION: $100

Envoie tout Maxou! Send all Maxou! Si tu coinces, pense à l'association! I fyou... Bises et courage, c'est beau! Ben 6 years ago