BENEFITING: VISION OF CHILDREN
EVENT DATE: Mar 09, 2014
Hello Everyone! I’m back to run the San Diego ½ Marathon on March 9th, 2014 for the Vision of Children-Team VOC-Racing for Research, but this year is different. This year you are getting 2 for the price of 1! I will have a very special person running alongside me this year, my daughter, Riley Segel, who is visually impaired and will benefit directly from the research and funding that the Vision of Children do for children with visual impairments.
This will be Riley’s 1st ½ Marathon!
Riley was born with ocular albinism and nystagmus: Ocular albinism is an inherited condition in which the eyes lack melanin pigment, while the skin and hair show normal or near-normal coloration.
The lack of pigment in the eyes causes various vision problems:
- Reduced visual acuity from 20/60 to 20/400 and sometimes as good as 20/25 in African-Americans,
- Nystagmus - involuntary back-and-forth movement of the eyes,
- Strabismus - crossed eyes or "lazy" eye, and
- Sensitivity to bright light and glare.
The reduced visual acuity may result in difficulty in school, such as inability to read what is written on a chalkboard except when very close, and difficulty with ball sports. It may also result in inability to drive.
But she doesn’t let it slow her down! See Riley’s YouTube video (filmed by her big sister Schade Segel) here: http://youtu.be/7w0dGmPsM0U
Riley is turning 15 this year, so in honor of her 15th birthday, we are hoping to raise $1,500.00 for the Vision of Children to help Riley and other kids like her. We are happy and proud to support the Vision of Children and all their dedication to eradication of hereditary childhood blindness and vision disorders.
We appreciate any and all support! Thank you so much!
Love, Cyndie & Riley