BENEFITING: Cystic Fibrosis Foundation
ORGANIZER: Cystic Fibrosis Foundation
EVENT: 2017 Boston Marathon
EVENT DATE: Apr 17, 2017
On April 17th, 2017, I will be running the Boston Marathon representing Team CF. This will be my first marathon and I am thrilled to be supporting the Cystic Fibrosis Foundation.
As many of you know, my sister, Courtney has Cystic Fibrosis (CF). She was diagnosed just a few days after birth and has been under a treatment regime since diagnosis. Courtney means the world to me. We share the same birthday (June 6th), many of the same friends, we’ve competed on several teams together and she even followed me to Wellesley College where we were fortunate to once again be triumphant field hockey and lacrosse teammates. Courtney is currently a senior at Wellesley where students make up the historic scream tunnel along the race course. I can’t think of a better time to run the marathon in honor of my sister and all her accomplishments while living with CF. I will certainly be challenging my lungs as I train and run this marathon – something that my sister has been doing for a lifetime.
CF, which affects the lungs and the digestive system, is one of themost common, fatal, genetic disease affecting children and young adults in the U.S. . Forty years ago, most children with CF did not live long enough to attend kindergarten. Today, half of those with CF are expected to live into their 40s and beyond. While life span and quality of life have improved significantly for patients with CF, there is still a real danger that some will succumb to this disease sooner rather than later. I am asking for your help to raise urgently needed funds that will be used to raise awareness, fund research, and advocate on behalf of CF patients across the world. There have been groundbreaking advances in CF treatments in recent years with the help of new technologies. These advances would not have been possible without the generous dontions from people across the world.
I know that there are unlimited opportunities to support charitable organizations. The CF Foundation has truly been a leader in the field. The Foundation's model has been nationally recognized and praised by leaders in medicine, business and health care advocacy. One of the highest honors came from President Barack Obama. During his 2015 State of the Union address, he cited the story of cystic fibrosis as an example of how nonprofits, the pharmaceutical industry, researchers, patients and their families can work together to produce more targeted and effective treatments for diseases.
CF is an inherited disease, in which children have a 1 in 4 chance of being born to parents who both carry the gene. Chris and I beat the odds – however I know that we both feel that we hit the jackpot with Courtney as a sister and friend. Our lives would not be the same without her. Please support my sister and the Cystic Fibrosis Foundation as I raise money for this important cause and run the Boston Marathon in her honor.