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24 HOURS FOR HANK INC's Fundraiser:

Cycling for Cystinosis

24 HOURS FOR HANK INC's Photo

BENEFITING: 24 HOURS FOR HANK INC

THE STORY:

My name is Dave Sturgis and this is my Grandson Henry. Henry has a rare metabolic disease called Cystinosis. I just turned 70 and am riding my bike in Race Across America www.raceacrossamerica.org - the world’s toughest bicycle race to raise funds to find a cure for Henry and those that suffer from Cystinosis.

Cystinosis is an incurable disease that only affects approximately 500 people, mostly children in the US and 2,000 worldwide, based on these rates, Cystinosis research is primarily funded through private donations.

Since being diagnosed Henry takes 22 doses of medicine per day to maintain his condition and hopefully stabilize this disease.  He also takes a Growth Hormone shot 6 days a week. He has occupational therapy, physical therapy, and speech therapy weekly, blood draws every two months and is seen by a kidney specialist quarterly to monitor his kidney function. 

In June of 2015 I will be on my bike, racing across America, but the most important race is to find a cure for Cystinosis for my grandson Henry and all the children that live with Cystinosis. With your help, life free of Cystinosis is within reach.

Time is of the essence - Thank you for supporting our family's race to save Henry.

To learn more about Henry and Cystinosis please visit www.24hoursforhank.org

           

 

DONATE

To This Fundraiser

$1,320

MONEY RAISED
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  • 2015 RAAM Rider

    $100

  • Don & Patty Noble

    $25

  • The Davis Family

    $100

  • Bennett Family

    $100

  • Dave & Carol Bray

    $100

  • Jim and Mary Gross

    $100

  • Anonymous

    $175

  • Jac & Liz Catt

    $300

  • Randi & Charlie Lui

    $20

  • Marin & Anita Johnson

    $100

  • Jeff and Rhyannon

    $200

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2% Raised of $80,000 Goal

Fundraise for this Campaign

The Team: $1,320 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Jeff and Rhyannon

Jeff and Rhyannon

DONATION: $200

3 years ago

Marin & Anita Johnson

Marin & Anita Johnson

DONATION: $100

3 years ago

Randi & Charlie Lui

Randi & Charlie Lui

DONATION: $20

I will be cheering you on the whole way Dave. You are da man! :) 3 years ago

Jac & Liz Catt

Jac & Liz Catt

DONATION: $300

In memory of Edith Marilyn Gallagher Catt. 4 years ago

Anonymous

ANONYMOUS

DONATION: $175

4 years ago

Jim and Mary Gross

Jim and Mary Gross

DONATION: $100

4 years ago

Dave & Carol Bray

Dave & Carol Bray

DONATION: $100

4 years ago

Bennett Family

Bennett Family

DONATION: $100

4 years ago

The Davis Family

The Davis Family

DONATION: $100

Go Dave… you ROCK! 4 years ago

Don & Patty Noble

Don & Patty Noble

DONATION: $25

4 years ago