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Jen Wyman's Fundraiser:

Cystinosis Research Network

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10th and Final Fun Run
April 23, 2016

We  hope to see you at our 10th and Final Fun Run on Sunday, May 1 at 9 am.   Please consider donating to the Cystinosis Research Network in  See more

BENEFITING: Cystinosis Research Network, Inc.

EVENT DATE: May 01, 2016

Jen Wyman

THE STORY:

Cystinosis is a rare, genetic, metabolic disease that causes the amino acid cystine to accumulate in various organs of the body.  The build-up of cystine in the cells slowly and eventually destroys all major organs of the body. Although medication is available to control the symptoms of this insidious disease, Cystinosis remains incurable.   

Kacy was diagnosed in 2006 at 4 years old.  She is now 13 years old. May, 2015 she received a kidney transplant from Tim (dad).  Kacy lives a relatively normal life, but her days are not easy ones.  They are filled with medication dosing every 8 hours (35 pills a day), eyedrops 6-8 times a day, doctor visits, and while she now has a well functioning kidney she also lives with a suppressed immune system.  

We partnered with CRN soon after diagnosis and are so grateful for the research they fund.  In the last 10 years she has benefited from the medical breakthroughs that have occurred.  CRN became our lifeline after diagnosis and continues to be a comfort for us as we continue this fight for our daughter as she grows through adolescence and into adulthood.  She has a HUGE life in front of her and it is our duty to mae it the best life it can be.

CRN is a volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance, and educating the public and medical communities about Cystinosis. 100% of your financial contribution funds important research that not only improves the quality of life for patients like Kacy, but keeps us hopeful for a cure in her lifetime.

DONATE

To This Fundraiser

$7,133

MONEY RAISED
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  • Anonymous

    $25

  • Matt Chope

     

  • kristin prebay

    $100

  • Scott & Tia Carmichael

    $1,500

  • Jeff & Jennifer Raab

    $200

  • Maureen Hart

    $50

  • Olivia Rabah

    $100

  • The Weeks Family

    $100

  • Todd & Amy Sanford

    $200

  • Sally and Tim

     

  • The Joy Family

    $250

  • Danielle Lauzon

     

  • The Lorincz Family

    $100

  • Renchik Family

    $100

  • The Spano Family

    $100

  • The O'Donnell Family

    $150

  • Darin Borlack

     

  • Lowell & Margaret Vick

    $50

  • Alex & Nickora Carmichael

    $100

  • Tilds Family

     

  • Anonymous

    $25

  • David Atkins

    $50

  • The Meyers

    $150

  • Michael and Katie Malley

    $100

  • Shauna & Richard Elias & Sons

     

  • Maria Lessnau

    $20

  • Rankin

    $100

  • Kurt & Mell McCourt

     

  • Amy Anstett

    $50

  • Appel family

    $100

  • Michelle Bone

    $20

  • Gerri Harmer

    $50

  • CrowdRise Donation

    $25

  • Anonymous

    $700

  • Anonymous

    $50

  • Lori & Sascha

    $100

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71% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $7,133 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Lori & Sascha

Lori & Sascha

DONATION: $100

In honor of Kacy Wyman 2 years ago

Anonymous

Anonymous

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $700

Kacy Wyman's fun run. 2 years ago

CrowdRise Donation

CrowdRise Donation

DONATION: $25

2 years ago

Gerri Harmer

Gerri Harmer

DONATION: $50

2 years ago

Michelle Bone

Michelle Bone

DONATION: $20

Kacy Wyamn 2 years ago

Appel family

Appel family

DONATION: $100

2 years ago

Amy Anstett

Amy Anstett

DONATION: $50

2 years ago

Kurt & Mell McCourt

Kurt & Mell McCourt

2 years ago

Rankin

Rankin

DONATION: $100

2 years ago