BENEFITING: Cure JM Foundation
EVENT DATE: Nov 11, 2017
Danielle Britten wrote -
Join us for the Inaugural Walk Strong to Cure JM – Dallas/Fort Worth
WHEN: Saturday November 11, 2017
WHERE: River Legacy Park
701 N.W. Green Oaks Blvd., Arlington, TX 76006
9AM - check-in and events begin (same day registration available)
10AM - Noon- Walk and festivities
Register at www.crowdrise.com/walkstrongdallas
Contact Walk Chair Jennifer Howard at firstname.lastname@example.org or 443-717-4152 for more information.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can cause pain, weakness, inability to walk and disfigurement. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.
And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure. Last year, we were able to fund research at 10 prestigious research institutions, helping to advance JM research at an unprecedented pace! Your support now will keep that momentum going.
After numerous visits to different doctors, Chloe Belle was diagnosed with Juvenile Dermatomyositis (JM) at the age 3. The news was devastating but thanks to God's guiding hand we had at least finally found a doctor who knew what was going on with Chloe. That being said, literature provided by the diagnosing doctor regarding the news was not good. JM has no cure and is life-threatening. When she was diagnosed, she couldn't climb stairs, get into her car seat, get in or out of bed, fell all the time, needed help to get up, rashes on joints, etc., etc., etc. She couldn't even sit criss-cross applesauce at pre-school. Once admitted to the hospital, a muscle biopsy and MRI was conducted to confirm the diagnosis. We cried, then cried some more, then the fight for Chloe to get her the best treatment possible. There have been too many medications to count and won't list them all as they would take up half a page but the big ones have been IV steroids, immunoglobulin infusions, chemo shots, numerous pills, etc. She has had one flare after trying to reduce some of the medications. In layman's terms her body's immune system attacks her own body and won't stop on its own. The medications suppress the immune system. Ironically, as we are trying to tame her immune system, it leaves her open to infection. She can't receive any live virus vaccines and every time someone gets sick it is concerning to say the least. All that being said, by the grace of God and numerous prayers from family and friends, Chloe is now in medical remission and is currently exhibiting no symptoms. She is currently on on three medications to control it and are slowly tapering the chemo pill. She was able to convert from the shot to the pills and that was a